ArticlePatient education and counseling2012
Health information needs and health-related quality of life in a diverse population of long-term cancer survivors.
Article in Patient education and counseling, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03035773 (Simplifying Survivorship Care Planning; Comparing the Efficacy and Patient-Centeredness of Three Care Delivery Models), which is not on this map. Cited by 82 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Simplifying Survivorship Care Planning; Comparing the Efficacy and Patient-Centeredness of Three Care Delivery Models
Who cites it
82 citing papers in PubMed, 3 syntheses or guidelines pooled it, 159 citations in OpenAlex.
- The impact of chronic conditions on the economic burden of cancer survivorship: a systematic review.Expert review of pharmacoeconomics & outcomes research · 2016Pooled it
- Survivorship care plan preferences of cancer survivors and health care providers: a systematic review and quality appraisal of the evidence.Journal of cancer survivorship : research and practice · 2016Pooled it
- Cancer survivors' experiences of using survivorship care plans: a systematic review of qualitative studies.Journal of cancer survivorship : research and practice · 2015Pooled it
- Improved cancer coping from a web-based intervention for prostate cancer survivors: A randomized controlled trial.Psycho-oncology · 2021Trial
- Online support needs and preferences for survivors of testicular cancer: a qualitative descriptive study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Digital information-seeking behaviors among cancer survivors: associations with sociodemographic determinants, cancer history, and perceived health.Journal of cancer survivorship : research and practice · 2025Article
- Health Information Disparities Among Asian American People With Cancer.JCO oncology practice · 2025Article
- Cancer related information that cancer patients need.Scientific reports · 2025Article
- Examining cancer patient preferences during three stages of decision making and family involvement: a multicenter survey study in China.BMC medical informatics and decision making · 2025Article
- Cancer prognosis information-seeking among survivors and caregivers: findings from the National Cancer Institute's Cancer Information Service.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Clinical Practice Guideline-Inconsistent Management of Fertility Preservation in Pediatric Cancer Patients in Community Settings: A Children's Oncology Group Study.Journal of adolescent and young adult oncology · 2024Article
- Recommendations to improve use and dissemination of patient versions of oncological clinical practice guidelines in Germany: results of a multi-stakeholder workshop.BMC public health · 2024Article
- A Clinical Focus on Shared Decision Making in Clinical Practice When Providing Dysarthria and Dysphagia Services to Individuals With Amyotrophic Lateral Sclerosis.Perspectives of the ASHA special interest groups · 2024Article
- Recruitment of sexual minority and heterosexual colorectal cancer survivors through US cancer registries.Journal of cancer survivorship : research and practice · 2024Article
- Use, applicability, and dissemination of patient versions of clinical practice guidelines in oncology in Germany: a qualitative interview study with healthcare providers.BMC health services research · 2024Article
- Understanding Fertility Attitudes and Outcomes Among Survivors of Adolescent and Young Adult Cancers in a Low-Resource Setting: A Registry-Based Computer-Assisted Telephone Interview Survey.Journal of adolescent and young adult oncology · 2023Article
- Cancer Survivors' Evolving Perceptions of a New Supportive Virtual Program.Current oncology (Toronto, Ont.) · 2022Article
- Post-traumatic growth 5 years after cancer: identification of associated actionable factors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Article
- Online Health Information Seeking Behaviors Among Older Adults: Systematic Scoping Review.Journal of medical Internet research · 2022Article
22 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 7 institutions in 1 country.
Funding
Abstract
objectiveTo investigate health information needs and their association with health-related quality of life (HRQOL) in a diverse, population-based sample of long-term cancer survivors.
methodsWe analyzed health information needs from 1197 cancer survivors 4-14 years post-diagnosis drawn from two cancer registries in California. Multivariable regression models were used to identify factors associated with endorsement of total number and different categories of needs. The relationship between number of needs and HRQOL and effect modification by confidence for obtaining information was examined.
resultsSurvivors reported a high prevalence of unmet information needs in the following categories: side effects & symptoms: 75.8%; tests & treatment: 71.5%; health promotion: 64.5%; interpersonal & emotional: 60.2%; insurance: 39.0%; and sexual functioning & fertility: 34.6%. Survivors who were younger, non-White, and did not receive but wanted a written treatment summary reported a higher number of needs. Number of information needs was inversely related to mental well-being, particularly for those with low confidence for obtaining information (P<0.05).
conclusionThese patterns suggest disparities in access to important health information in long-term survivors and that affect HRQOL. PRACTICE IMPLICATIONS: Findings suggest a need for tailored interventions to equip survivors with comprehensive health information and to bolster skills for obtaining information.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.