ArticleInternational journal of circumpolar health2012
Forging a new legacy of trust in research with Alaska Native college students using CBPR.
Article in International journal of circumpolar health, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Indigenizing Quality of Life: The Goodness of Life for Every Alaska Native Research Study.Applied research in quality of life · 2021Article
- Incorporating Participant and Clinical Feedback into a Community-Based Participatory Research Study of Colorectal Cancer Among Alaska Native People.Journal of community health · 2020Article
- Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community.Journal of community genetics · 2019Article
- Using Risk Communication Strategies for Zika Virus Prevention and Control Driven by Community-Based Participatory Research.International journal of environmental research and public health · 2018Article
- Trust and the Ethical Conduct of Community-Engaged Research.European journal for person centered healthcare · 2017Article
- Pharmacogenetic research in partnership with American Indian and Alaska Native communities.Pharmacogenomics · 2014Article
- Disseminating research in rural Yup'ik communities: challenges and ethical considerations in moving from discovery to intervention development.International journal of circumpolar health · 2013Article
- "What makes life good?" Developing a culturally grounded quality of life measure for Alaska Native college students.International journal of circumpolar health · 2013Article
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Authors and funding
4 authors.
Funding
Abstract
objectivesDisparities in the rates of matriculation and graduation are of concern to Alaska Native (AN) students and the universities committed to their academic success. Efforts to reduce attrition require a keen understanding of the factors that impact quality of life (QOL) at college. Yet, a long-standing legacy of mistrust towards research poses challenges to conducting inquiry among AN students. We introduced a partnership between the University of Alaska Fairbank's Rural Student Services (RSS) and the Center for Alaska Native Health Research (CANHR) within which we conducted the "What makes life good?" study aimed towards developing a QOL measure for AN students. Equally important was building a legacy of research trust among AN partners. STUDY
designWe describe Phase I of a 2-phase study that employed a sequential mixed methods approach. Discussed are facilitators, challenges and lessons learned while striving to adhere to the principles of community-based participatory research (CBPR).
methodsPhase I included formative focus groups and QOL measurement development. The research involved the interplay among activities that were co-developed with the goal of enhancing trust and research capacity. Emphasis was placed on ensuring that data collection and analyses were student driven.
conclusionsAll partners resided at the same university. However, trust and collaboration could not be assumed. Working within a collaborative framework, our partnership achieved the aim of developing a culturally informed QOL measure, while also creating an empowering experience for all partners who became co-investigators in a process that might normally be regarded with mistrust.
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