ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2013
Evaluation of a patient information website for childhood cancer survivors.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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The trial behind it
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Who cites it
14 citing papers in PubMed.
- Nutritional Online Information for Cancer Patients: a Randomized Trial of an Internet Communication Plus Social Media Intervention.Journal of cancer education : the official journal of the American Association for Cancer Education · 2016Trial
- Survivorship Care Plan: Correlation between Practitioners and a Digital Tool (LOG-After).Journal of pediatrics. Clinical practice · 2026Article
- Developing and Integrating Digital Sources in an Accessible and Sustainable Online Platform for Adolescents and Young Adult Cancer Survivors: Collaborative Design Approach.JMIR formative research · 2025Article
- Development and assessment of the usability of a web-based referral to treatment tool for persons with substance use disorders.BMC medical informatics and decision making · 2021Article
- Evaluation of a Digital Health Initiative in Illicit Substance Use: Cross-sectional Survey Study.Journal of medical Internet research · 2021Article
- Digital Interventions to Support Adolescents and Young Adults With Cancer: Systematic Review.JMIR cancer · 2019Review
- Late effects awareness website for pediatric survivors of acute lymphocytic leukemia.PloS one · 2018Article
- Development and Initial Assessment of a Patient Education Video about Pharmacogenetics.Journal of personalized medicine · 2017Article
- Media Use and the Cancer Communication Strategies of Cancer Survivors.Journal of cancer prevention · 2016Review
- Evaluation of a pharmacogenetic educational toolkit for community pharmacists.Pharmacogenomics · 2016Article
- Providing Information About Late Effects During Routine Follow-Up Consultations Between Pediatric Oncologists and Adolescent Survivors: A Video-Based, Observational Study.Journal of adolescent and young adult oncology · 2015Observational
- The Prevalence and Characteristics of Emergency Medicine Patient Use of New Media.JMIR mHealth and uHealth · 2015Article
- A Concise and Practical Framework for the Development and Usability Evaluation of Patient Information Websites.Applied clinical informatics · 2015Article
- Health media use among childhood and young adult cancer survivors who smoke.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2014Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeChildhood cancer survivors (CCS) are in need of specialized information about late effects of treatment. In the current study, we assessed the perceived usability and satisfaction with the content of a national website with information on late effects and analyzed possible determinants related to website usability and content satisfaction.
methodsCCS and their parents were contacted through our local follow-up program and via online media to complete an online questionnaire regarding their baseline characteristics, medical decision style, and the usability and content of the website. Usability was evaluated using the System Usability Scale (SUS), a validated questionnaire resulting in a score from 0 to 100. For the content rating, we constructed a six-item scale resulting in a score from 1 to 5 (Cronbach's α, 0.83). Comments were analyzed qualitatively.
resultsFifty-five survivors and forty-three parents of survivors completed the questionnaire. Median age of respondents was 41 years (range, 17-58). Respondents rated the website's usability with a mean SUS score of 72.5 (95 % CI, 69.2-74.9). The mean content rating was 3.7 (95 % CI, 3.5-3.8). No determinants were significantly related to the perceived usability or content satisfaction in multivariate analyses. Qualitative analysis revealed respondents' preference for more detailed and even scientific information on late effects.
conclusionRespondents were satisfied with the usability and the contents of a website that targeted at their information needs. As knowledge about late effects is still limited among survivors, a website can be a valuable resource to improve their knowledge, promote healthy behavior, and in the end, improve their quality of life.
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Registered trials
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