ArticleBMC gastroenterology2012
Patients' perspectives of living with a percutaneous endoscopic gastrostomy (PEG).
Article in BMC gastroenterology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 43 citations in OpenAlex.
- The Effect of Enteral Tube Feeding on Patients' Health-Related Quality of Life: A Systematic Review.Nutrients · 2019Pooled it
- Exploring Longterm Gastrostomy Use in Adults With Cystic Fibrosis.Pediatric pulmonology · 2026Article
- Motivation and challenges in decision making for gastrostomy tube placement and use: a focus on patients with cancer and dysphagia.BMC medical informatics and decision making · 2026Article
- The percutaneous endoscopic gastrostomy care practices of patients and the care burden of caregivers: a cross-sectional study.BMC gastroenterology · 2026Article
- Factors Influencing Decision Making for Gastrostomy Tube Placement for People Living with Serious Illness: A Scoping Review.Journal of palliative medicine · 2025Article
- Roux-en-Y jejunostomy in gastroparesis: Insight into patient perspectives and outcomes.World journal of gastrointestinal surgery · 2025Article
- The Impact of Palliative Decompressive Gastrostomy Tube Placement on Patients and Their Caregivers: A Mixed Methods Analysis.Annals of surgical oncology · 2024Article
- A scoping review of best practices in home enteral tube feeding.Primary health care research & development · 2022Article
- A Matter of Taste? Quality of Life in Day-to-Day Living with ALS and a Feeding Tube.Culture, medicine and psychiatry · 2016Observational
- Is short-term percutaneous endoscopic gastrostomy tube placement beneficial in acutely ill cognitively intact elderly patients? A proposed decision-making algorithm.Geriatrics & gerontology international · 2015Article
- Development and evaluation of a home enteral nutrition team.Nutrients · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSince enteral nutrition therapy is the preferred nutritional support for dysphagic patients with a range of diagnoses, PEG has become part of traditional care. However, enteral nutrition with PEG transfers treatment responsibility and activity to the patients and their carers, so the advantages should be discussed. The aim of this study was therefore to investigate patients' experience of living with a percutaneous endoscopic gastrostomy (PEG) in order to increase the understanding of patients' need for support.
methodIn a prospective study at Karolinska University Hospital in Sweden, data were collected consecutively at the time of PEG and two months later using a study-specific questionnaire about each patient's experience of living with a PEG. Fishers exact test was used to test for statistically significant difference at five per cent level.
resultsThere were 104 responders (response rate of 70%). Women felt more limited in daily activity compared to men (p = 0.004). Older patients experienced a more limited ability to influence the number of feeding times compared to younger (p = 0.026). Highly educated patients found feeding more time-consuming (p = 0.004). Patients with a cancer diagnosis reported that the PEG feeding interfered with their oral feeding more than patients with a neurological disease (p = 0.009). Patients mostly contacted the PEG outpatient clinic with problems regarding their PEG, and were mainly assisted by their spouse rather than district nurses.
conclusionsPEG feeding is time-consuming and interferes with daily life. Although 73% was satisfied, patients' experiences of living with a PEG may be dependent on age, sex, education and diagnosis. Spouses are the main carers for PEG patients at home, and patients prefer to go to the PEG outpatient clinic for help if problems occur.
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