ArticleInternational journal of integrated care
A web-based communication system for integrated care in cerebral palsy: experienced contribution to parent-professional communication.
Article in International journal of integrated care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.
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Who cites it
9 citing papers in PubMed, 2 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- Digital and Mobile Technologies to Promote Physical Health Behavior Change and Provide Psychological Support for Patients Undergoing Elective Surgery: Meta-Ethnography and Systematic Review.JMIR mHealth and uHealth · 2020Pooled it
- Cerebral palsy information system with an approach to information architecture: a systematic review.BMJ health & care informatics · 2019Pooled it
- My Team of Care Study: A Pilot Randomized Controlled Trial of a Web-Based Communication Tool for Collaborative Care in Patients With Advanced Cancer.Journal of medical Internet research · 2017Trial
- Patient Perspectives on Communication Pathways After Orthopedic Surgery and Discharge and Evaluation of Team-Based Digital Communication: Qualitative Exploratory Study.JMIR human factors · 2024Article
- Health Care Professionals' Perspectives Before and After Use of eDialogue for Team-Based Digital Communication Across Settings: Qualitative Study.JMIR human factors · 2024Article
- Designing Digital Health Technology to Support Patients Before and After Bariatric Surgery: Qualitative Study Exploring Patient Desires, Suggestions, and Reflections to Support Lifestyle Behavior Change.JMIR human factors · 2022Article
- Disruption or innovation? A qualitative descriptive study on the use of electronic patient-physician communication in patients with advanced cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Digital Clinical Communication for Families and Caregivers of Children or Young People With Short- or Long-Term Conditions: Rapid Review.Journal of medical Internet research · 2018Review
- The chronic care model and technological research and innovation: a scoping review at the crossroads.Journal of medical Internet research · 2015Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionTo improve communication in the integrated care setting of children with cerebral palsy, we developed a web-based system for parent-professional and inter-professional communication. The present study aimed to evaluate parents' experiences regarding the system's contribution to their communication with professionals during a six-months pilot in three Dutch care regions. In addition, factors associated with parents' system use and non-use were analyzed. THEORY AND
methodsThe system's functional specifications were based on key elements of the Chronic Care Model and quality dimensions formulated by the Institute of Medicine. At baseline, parents completed a T0-questionnaire on their experiences regarding sufficiency of contact, accessibility of professionals, timeliness of information exchange, consistency of information and parents' role as messenger of information and/or care coordinator. After the pilot, parents completed a T1-questionnaire on their experiences regarding the system's contribution to each of these aspects.
resultsOf the 30 participating parents 21 had used the system, of which 20 completed the T1-questionnaire. All these parents indicated that they had experienced a contribution of the system to parent-professional communication, especially with respect to accessibility of professionals, sufficiency of contact and timeliness of information exchange, and to a lesser extent consistency of information and parents' messenger/coordinator role. In comparison with non-users, users had less positive baseline experiences with accessibility and a higher number of professionals in the child's care network.
conclusionsAll users indicated a contribution of the system to parent-professional communication, although the extent of the experienced contribution varied considerably. Based on the differences found between users and non-users, further research might focus on the system's value for complex care networks and problematic access to professionals.
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