Risks to relatives in genomic research: a duty to warn?

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

Who cites it

15 citing papers in PubMed.

1. How Genetics and Genomics Advances Are Rewriting Pediatric Cancer Research and Clinical Care.Medicina (Kaunas, Lithuania) · 2022
   Review
2. Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study.BMC medical ethics · 2022
   Article
3. "If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.New genetics and society · 2022
   Article
4. Cascading After Peridiagnostic Cancer Genetic Testing: An Alternative to Population-Based Screening.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2020
   Article
5. Getting personal: Head and neck cancer management in the era of genomic medicine.Head & neck · 2016
   Review
6. Family decision maker perspectives on the return of genetic results in biobanking research.Genetics in medicine : official journal of the American College of Medical Genetics · 2016
   Article
7. Germline Variants in Targeted Tumor Sequencing Using Matched Normal DNA.JAMA oncology · 2016
   Article
8. Germline Mutations in Predisposition Genes in Pediatric Cancer.The New England journal of medicine · 2015
   Article
9. Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015
   Article
10. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015
    Article
11. International Policies on Sharing Genomic Research Results with Relatives: Approaches to Balancing Privacy with Access.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015
    Article
12. Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project.Mayo Clinic proceedings · 2014
    Article
13. Cancer genomics and inherited risk.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2014
    Article
14. Revealing the incidentalome when targeting the tumor genome.JAMA · 2013
    Article
15. Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".The American journal of bioethics : AJOB · 2012
    Article

Corrections and comments

• Comment on
  Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives.2012

Authors and funding

3 authors.

Funding

Abstract

PubMed holds no abstract for this paper.

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