ArticleInternational journal of qualitative studies on health and well-being2012
Suffering caused by care--patients' experiences from hospital settings.
Article in International journal of qualitative studies on health and well-being, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
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Who cites it
25 citing papers in PubMed.
- A desire to be embraced - the lived experience of encountering primary health care for a person with mental health problems. A descriptive phenomenological study.Scandinavian journal of primary health care · 2026Article
- The Meaning of Establishing and Maintaining a Caring Relationship in the Prehospital Context as Experienced by Specialist Ambulance Nurses.Scandinavian journal of caring sciences · 2026Article
- "Behavioral sciences (Basel, Switzerland) · 2024Article
- Clinical Assessment of Osteoarthritis Pain: Contemporary Scenario, Challenges, and Future Perspectives.Pain and therapy · 2024Review
- Foreign movement in one's own body: Patients' experiences of being awake while treated with catheter ablation-a phenomenological study.International journal of qualitative studies on health and well-being · 2023Article
- The use of an object: exploring physician burnout through object relations theory.Medical humanities · 2023Article
- A phenomenological interview study with patients being non-conveyed in the ambulance service.BMC emergency medicine · 2023Article
- Prevalence and reasons influenced medication non-adherence among diabetes patients: A mixed-method study.Journal of diabetes and metabolic disorders · 2022Article
- Development and psychometric properties of the hospitalized elder abuse questionnaire (HEAQ): a mixed methods study.BMC geriatrics · 2022Review
- Preference-based patient participation for most, if not all: A cross-sectional study of patient participation amongst persons with end-stage kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- "I'm outta here!": a qualitative investigation into why Aboriginal and non-Aboriginal people self-discharge from hospital.BMC health services research · 2021Article
- How and Why Patient Concerns Influence Pain Reporting: A Qualitative Analysis of Personal Accounts and Perceptions of Others' Use of Numerical Pain Scales.Frontiers in psychology · 2021Article
- Unmet health-care needs and human rights-A qualitative analysis of patients' complaints in light of the right to health and health care.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Sonographers' experiences of being a caring professional within private practice in the province of Gauteng.Health SA = SA Gesondheid · 2020Article
- Pain and Suffering.Seminars in oncology nursing · 2019Review
- Early integration of palliative cancer care: patients' and caregivers' challenges, treatment preferences, and knowledge of illness and treatment throughout the cancer trajectory.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Dimensions of Phenomenology in Exploring Patient's Suffering in Long-Life Illnesses: Qualitative Evidence Synthesis.Journal of patient experience · 2018Article
- Silence, shame and abuse in health care: theoretical development on basis of an intervention project among staff.BMC medical education · 2016Article
- Patients' experiences of support for learning to live with diabetes to promote health and well-being: A lifeworld phenomenological study.International journal of qualitative studies on health and well-being · 2016Article
- Patients' perceptions of the meaning of good care in surgical care: a grounded theory study.BMC nursing · 2016Article
Corrections and comments
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Authors and funding
4 authors.
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No grant is acknowledged in the PubMed record.
Abstract
Suffering and well-being are significant aspects of human existence; in particular, suffering and well-being are important aspects of patients' experiences following diseases. Increased knowledge about existential dimensions of illness and healthcare experiences may be needed in order to improve care and reduce unnecessary suffering. Therefore, the aim of this paper is to illuminate the phenomenon of suffering experienced in relation to healthcare needs among patients in hospital settings in Sweden. In this study, we used a reflective lifeworld approach. The data were analysed with a focus on meanings. The results describe the essential meaning of the phenomenon of suffering in relation to healthcare needs. The patients were suffering during care-giving when they felt distrusted or mistreated and when their perspective on illness and health was overlooked. Suffering was found to arise due to healthcare actions that neglected a holistic and patient-centred approach to care. Unfortunately, healthcare experiences that cause patients to suffer seem to be something one needs to endure without being critical. The phenomenon can be described as having four constituents: to be mistreated; to struggle for one's healthcare needs and autonomy; to feel powerless; and to feel fragmented and objectified. The study concludes that there are problems associated with patients experiencing suffering at the hands of healthcare providers, even if this suffering may not have been caused deliberately to the patient. Consequently, conscious improvements are needed to lessen the suffering caused by care-giving, as are strategies that promote more patient-centred care and patient participation.
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