ArticleBMJ open2012
Registration in a quality register: a method to improve end-of-life care--a cross-sectional study.
Article in BMJ open, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Death rattle: critical review and research agenda.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2014Pooled it
- Evaluating quality of palliative care from the perspective of healthcare professionals in different care settings: development of the quality of palliative care questionnaire - staff.BMC palliative care · 2026Article
- What gets measured in palliative care? A review and synthesis of routine data collection in 16 countries.Health policy OPEN · 2025Review
- Pilot Study to Develop and Test Palliative Care Quality Indicators for Nursing Homes.International journal of environmental research and public health · 2021Article
- Were Clinical Routines for Good End-of-Life Care Maintained in Hospitals and Nursing Homes During the First Three Months of the Outbreak of COVID-19? A National Register Study.Journal of pain and symptom management · 2021Article
- Quality of end-of-life care in patients with dementia compared to patients with cancer: A population-based register study.PloS one · 2018Article
- Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesStructured methods to assess and support improvement in the quality of end-of-life care are lacking and need to be developed. This need is particularly high outside the specialised palliative care. This study examines whether participation in a national quality register increased the quality of end-of-life care.
designThis study is a cross-sectional longitudinal register study.
settingThe Swedish Register of Palliative Care (SRPC) collects data about end-of-life care for deaths in all types of healthcare units all over Sweden. Data from all 503 healthcare units that had reported patients continuously to the register during a 3-year period were analysed. PRIMARY AND SECONDARY OUTCOME MEASURES: Data on provided care during the last weeks of life were compared year-by-year with logistic regression.
participantsThe study included a total 30 283 patients. The gender distribution was 54% women and 46% men. A total of 60% of patients in the study had a cancer diagnosis.
resultsProvided end-of-life care improved in a number of ways. The prevalence of six examined symptoms decreased. The prescription of 'as needed' medications for pain, nausea, anxiety and death rattle increased. A higher proportion of patients died in their place of preference. The patient's next of kin was more often offered a follow-up appointment after the patient's death. No changes were seen with respect to providing information to the patient or next of kin.
conclusionsParticipation in a national quality register covariates with quality improvements in end-of-life care over time.
Identifiers
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Registered trials
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