ArticleJournal of the American Medical Informatics Association : JAMIA2013
Privacy by Design at Population Data BC: a case study describing the technical, administrative, and physical controls for privacy-sensitive secondary use of personal information for research in the public interest.
Article in Journal of the American Medical Informatics Association : JAMIA, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- Implementing virtual desktops for clinical research at an academic health center: a case report.JAMIA open · 2024Article
- Physician Financial Incentives to Reduce Unplanned Hospital Readmissions: an Interrupted Time Series Analysis.Journal of general internal medicine · 2021Observational
- Population segments as a tool for health care performance reporting: an exploratory study in the Canadian province of British Columbia.BMC family practice · 2020Article
- Mental health of parents of children with a developmental disability in British Columbia, Canada.Journal of epidemiology and community health · 2020Article
- Sharing linked data sets for research: results from a deliberative public engagement event in British Columbia, Canada.International journal of population data science · 2019Article
- Mobile Health Systems for Community-Based Primary Care: Identifying Controls and Mitigating Privacy Threats.JMIR mHealth and uHealth · 2019Article
- A Position Statement on Population Data Science: The Science of Data about People.International journal of population data science · 2018Article
- Population data science: advancing the safe use of population data for public benefit.Epidemiology and health · 2018Review
- Design and Implementation of a Secure Computing Environment for Analysis of Sensitive Data at an Academic Medical Center.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
- Using Distributed Data over HBase in Big Data Analytics Platform for Clinical Services.Computational and mathematical methods in medicine · 2017Article
- eRegistries: governance for electronic maternal and child health registries.BMC pregnancy and childbirth · 2016Article
- Preparing linked population data for research: cohort study of prisoner perinatal health outcomes.BMC medical research methodology · 2016Article
- A case study of the Secure Anonymous Information Linkage (SAIL) Gateway: a privacy-protecting remote access system for health-related research and evaluation.Journal of biomedical informatics · 2014Article
- Linking Canadian population health data: maximizing the potential of cohort and administrative data.Canadian journal of public health = Revue canadienne de sante publique · 2013Article
- Biomedical data privacy: problems, perspectives, and recent advances.Journal of the American Medical Informatics Association : JAMIA · 2013Article
- Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders.Journal of the American Medical Informatics Association : JAMIAArticle
- Fatal overdoses after release from prison in British Columbia: a retrospective data linkage study.CMAJ openArticle
- Privacy preserving interactive record linkage (PPIRL).Journal of the American Medical Informatics Association : JAMIAReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Population Data BC (PopData) is an innovative leader in facilitating access to linked data for population health research. Researchers from academic institutions across Canada work with PopData to submit data access requests for projects involving linked administrative data, with or without their own researcher-collected data. PopData and its predecessor-the British Columbia Linked Health Database-have facilitated over 350 research projects analyzing a broad spectrum of population health issues. PopData embeds privacy in every aspect of its operations. This case study focuses on how implementing the Privacy by Design model protects privacy while supporting access to individual-level data for research in the public interest. It explores challenges presented by legislation, stewardship, and public perception and demonstrates how PopData achieves both operational efficiencies and due diligence.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.