ArticlePatient preference and adherence2012
Parents' views on growth hormone treatment for their children: psychosocial issues.
Article in Patient preference and adherence, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed.
- Discomfort towards peers causes therapy-related stress in children and adolescents on daily rhGH therapy.Frontiers in endocrinology · 2025Observational
- Evaluating the TUITEKFrontiers in endocrinology · 2023Article
- Investigating the Impact of the TUITEKFrontiers in endocrinology · 2022Article
- Maternal anxiety in relation to growth failure and growth hormone treatment in children.Medicine · 2020Observational
- Exploring Potentially Modifiable Factors That Influence Treatment Non-Adherence Amongst Pediatric Growth Hormone Deficiency: A Qualitative Study.Patient preference and adherence · 2020Article
- Shared Decision-Making in Growth Hormone Therapy-Implications for Patient Care.Frontiers in endocrinology · 2018Review
- Effect of adherence to growth hormone treatment on 0-2 year catch-up growth in children with growth hormone deficiency.PloS one · 2018Article
- Maintaining persistence and adherence with subcutaneous growth-hormone therapy in children: comparing jet-delivery and needle-based devices.Patient preference and adherence · 2014Article
- Transjecting growth hormone: continuous nightmare or controlled nuisance? Evaluation of a new needle-free device.Patient preference and adherence · 2013Article
- Internet informs parents about growth hormone.Hormone research in paediatrics · 2013Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWe evaluated the opinions of parents in The Netherlands concerning treatment of their children with growth hormone, and examined beliefs and perceptions about treatment and quality of health care communication and support.
methodsAn Internet survey was completed by 69 parents who had children prescribed growth hormone and were part of the Patient Intelligence Panel. Acceptance of the diagnosis and treatment was investigated with reference to four topics, ie, search and quality of information, involvement in decision-making process, operational aspects, and emotional problems and support.
resultsAmong the parents surveyed, 48% reported a lack of freedom to choose the type of growth hormone device that best suited their needs, 92% believed that their children (and they themselves) would benefit if the children self-administered growth hormone, and 65% believed training to support self-administration would be helpful. According to 79%, the availability of support from another parent with experience of treating their own child with growth hormone, alongside their doctor, would be valuable. Thirty-seven percent of the parents indicated that their children felt anxious about administration of growth hormone, and 83% of parents would appreciate psychological support to overcome their anxiety. An increase in reluctance to receive treatment with growth hormone was observed by 40% of parents after the children reached puberty, and 57% of these parents would appreciate psychological support to overcome this reluctance.
conclusionUnderstanding how growth hormone treatments and their implications are perceived by parents is a first step towards addressing quality of growth hormone treatment, which may be instrumental in improving adherence. The data show a need for support and involvement of parents in the process of choosing a growth hormone device. This decision-making process may be instrumental in improving acceptance and diminishing emotional problems for children using growth hormone.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.