SynthesisJournal of medical Internet research2012
Are personal health records safe? A review of free web-accessible personal health record privacy policies.
Synthesis in Journal of medical Internet research, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Functionalities and Issues in the Implementation of Personal Health Records: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- Personal Health Records: A Systematic Literature Review.Journal of medical Internet research · 2017Pooled it
- User Information Sharing and Hospital Website Privacy Policies.JAMA network open · 2024Article
- Integrated personal health record (PHR) security: requirements and mechanisms.BMC medical informatics and decision making · 2023Review
- The Use of a Technology Acceptance Model (TAM) to Predict Patients' Usage of a Personal Health Record System: The Role of Security, Privacy, and Usability.International journal of environmental research and public health · 2023Article
- Public Attitudes Regarding Trade-offs Between the Functional Aspects of a Contact-Confirming App for COVID-19 Infection Control and the Benefits to Individuals and Public Health: Cross-sectional Survey.JMIR formative research · 2022Article
- Mechanism Design of Health Care Blockchain System Token Economy: Development Study Based on Simulated Real-World Scenarios.Journal of medical Internet research · 2021Article
- A Worker-Centered Personal Health Record App for Workplace Health Promotion Using National Health Care Data Sets: Design and Development Study.JMIR medical informatics · 2021Article
- A Blockchain-Based Secret-Data Sharing Framework for Personal Health Records in Emergency Condition.Healthcare (Basel, Switzerland) · 2021Article
- Health websites on COVID-19: are they readable and credible enough to help public self-care?Journal of the Medical Library Association : JMLA · 2021Article
- Consumers' Intentions to Adopt Blockchain-Based Personal Health Records and Data Sharing: Focus Group Study.JMIR formative research · 2020Article
- An Assessment of Health Information Systems Through the Perspective of Computer Engineering Students and Medical Students.Acta informatica medica : AIM : journal of the Society for Medical Informatics of Bosnia & Herzegovina : casopis Drustva za medicinsku informatiku BiH · 2019Article
- Sizing Prenatal mPHRs using COSMIC Measurement Method.Journal of medical systems · 2019Article
- Consumer-Mediated Data Exchange for Research: Current State of US Law, Technology, and Trust.JMIR medical informatics · 2019Article
- Sustainable Accessibility: A Mobile App for Helping People with Disabilities to Search Accessible Shops.International journal of environmental research and public health · 2019Article
- Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients.Journal of medical Internet research · 2018Article
- Evaluating the Privacy Policies of Mobile Personal Health Records for Pregnancy Monitoring.Journal of medical systems · 2018Article
- Adoption of Electronic Personal Health Records in Canada: Perceptions of Stakeholders.International journal of health policy and management · 2016Article
- Assessing Commercially Available Personal Health Records for Home Health: Recommendations for Design.Applied clinical informatics · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSeveral obstacles prevent the adoption and use of personal health record (PHR) systems, including users' concerns regarding the privacy and security of their personal health information.
objectiveTo analyze the privacy and security characteristics of PHR privacy policies. It is hoped that identification of the strengths and weaknesses of the PHR systems will be useful for PHR users, health care professionals, decision makers, and designers.
methodsWe conducted a systematic review using the principal databases related to health and computer science to discover the Web-based and free PHR systems mentioned in published articles. The privacy policy of each PHR system selected was reviewed to extract its main privacy and security characteristics.
resultsThe search of databases and the myPHR website provided a total of 52 PHR systems, of which 24 met our inclusion criteria. Of these, 17 (71%) allowed users to manage their data and to control access to their health care information. Only 9 (38%) PHR systems permitted users to check who had accessed their data. The majority of PHR systems used information related to the users' accesses to monitor and analyze system use, 12 (50%) of them aggregated user information to publish trends, and 20 (83%) used diverse types of security measures. Finally, 15 (63%) PHR systems were based on regulations or principles such as the US Health Insurance Portability and Accountability Act (HIPAA) and the Health on the Net Foundation Code of Conduct (HONcode).
conclusionsMost privacy policies of PHR systems do not provide an in-depth description of the security measures that they use. Moreover, compliance with standards and regulations in PHR systems is still low.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.