ArticleGenetics in medicine : official journal of the American College of Medical Genetics2012
Factors associated with knowledge of and satisfaction with newborn screening education: a survey of mothers.
Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 3 of them syntheses that pooled it.
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Who cites it
30 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- A systematic review of consumers' knowledge, attitudes and experiences of primary health professionals' role in genomic medicine.European journal of human genetics : EJHG · 2025Pooled it
- Psychosocial issues of neonatal screening in the context of its major expansion: a scoping review.Frontiers in psychology · 2025Pooled it
- Acceptability of childhood screening: a systematic narrative review.Public health · 2021Pooled it
- Maternal concern and refusal toward neonatal heel-prick screening: a cross-sectional survey from Türkiye.European journal of pediatrics · 2026Article
- The relationship between mothers' health literacy and their knowledge and attitudes towards newborn screening.Journal of community genetics · 2026Article
- An evaluation of U.S. federal investments in newborn screening: successes, gaps, and future directions.Frontiers in public health · 2026Article
- A Nationwide Survey Investigating the Current Status of Genetic Counseling in Newborn Screening in Japan.International journal of neonatal screening · 2025Article
- Training Primary Healthcare Professionals for Expanded Newborn Screening with Tandem Mass Spectrometry: Challenges for Community Genetics in Brazil.International journal of neonatal screening · 2025Article
- Experiences of perinatal genetic screening for people from migrant and refugee backgrounds: a scoping review.European journal of human genetics : EJHG · 2025Article
- Parental awareness and perspectives on newborn screening in China: a questionnaire-based study.BMC medical ethics · 2024Article
- One Size Does Not Fit All: A Multifaceted Approach to Educate Families about Newborn Screening.International journal of neonatal screening · 2024Review
- Identification of maternal attitudes and knowledge about newborn screenings: a Turkey sample.Journal of community genetics · 2023Article
- Parental Preferences for Expanded Newborn Screening: What Are the Limits?Children (Basel, Switzerland) · 2023Article
- Is Our Newborn Screening Working Well? A Literature Review of Quality Requirements for Newborn Blood Spot Screening (NBS) Infrastructure and Procedures.International journal of neonatal screening · 2023Review
- Information and Parental Consent for French Neonatal Screening: A Qualitative Study on Parental Opinion.International journal of neonatal screening · 2023Article
- Parental Awareness, Knowledge, and Attitudes Regarding Current and Future Newborn Bloodspot Screening: The First Report from Thailand.International journal of neonatal screening · 2023Article
- Psychosocial Issues Related to Newborn Screening: A Systematic Review and Synthesis.International journal of neonatal screening · 2022Review
- Parent's Satisfaction of Universal Newborn Hearing Screening Program in Iran.Indian journal of otolaryngology and head and neck surgery : official publication of the Association of Otolaryngologists of India · 2022Article
- Mothers' knowledge and attitudes about newborn screening in Jordan.Journal of community genetics · 2022Article
- Factors Influencing Parental Awareness about Newborn Screening.International journal of neonatal screening · 2019Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeEffective parental education about newborn blood-spot screening may facilitate prompt follow-up, reduce psychosocial harms, and promote trust in screening programs. However, little is known about the aspects of education delivery and content that are of most importance for fostering understanding and meeting parental expectations. We aimed to identify elements of newborn blood-spot screening education and their associations with mothers' knowledge and satisfaction levels.
methodsWe conducted a survey (by mail) of 1,712 mothers who were residing in Ontario, Canada, and whose infants had recently undergone newborn blood-spot screening.
resultsWe received 750 completed questionnaires (response rate 47%). Factors associated with respondents' higher knowledge of newborn blood-spot screening were higher level of education (odds ratio = 2.79), English being spoken at home (odds ratio = 1.96), receiving an information sheet at the time of newborn blood-spot screening (odds ratio = 1.57), and receiving information about how to interpret the results (odds ratio = 2.65). Factors associated with being satisfied were: receiving information prenatally (odds ratio = 2.35), from a health-care professional (odds ratio = 4.54), or from an information sheet at the time of newborn blood-spot screening (odds ratio = 1.72); and receiving messages about the purpose of screening (odds ratio = 3.78), the communication process (odds ratio = 2.57), the interpretation of the results (odds ratio = 4.19), and sample-handling methods (odds ratio = 3.13).
conclusionPromoting mothers' understanding and meeting their expectations with respect to education about newborn blood-spot screening may require greater engagement with prenatal providers. It also calls for a greater emphasis on communicating with mothers about how blood samples are handled and about the meaning of the test results.
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