ArticleJournal of genetic counseling2013
Life events may contribute to family communication about cancer risk following BRCA1/2 testing.
Article in Journal of genetic counseling, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 16 citations in OpenAlex.
- Cascade genetic testing for hereditary cancer syndromes: a review of barriers and breakthroughs.Familial cancer · 2024Review
- Article
- Issues associated with a hereditary risk of cancer: Knowledge, attitudes and practices of nurses in oncology settings.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2022Article
- The Role of Palliative Medicine in Assessing Hereditary Cancer Risk.The American journal of hospice & palliative care · 2018Observational
- Issues related to family history of cancer at the end of life: a palliative care providers' survey.Familial cancer · 2018Article
- Quantifying family dissemination and identifying barriers to communication of risk information in Australian BRCA families.Genetics in medicine : official journal of the American College of Medical Genetics · 2017Article
- Supporting disclosure of genetic information to family members: professional practice and timelines in cancer genetics.Familial cancer · 2017Article
- Aligning policy to promote cascade genetic screening for prevention and early diagnosis of heritable diseases.Journal of genetic counseling · 2015Article
- Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk.European journal of human genetics : EJHG · 2013Article
- Colorectal cancer: Cascade genetic testing in Lynch syndrome: room for improvement.Nature reviews. Gastroenterology & hepatology · 2013Article
- Family communication following BRCA1/2 genetic testing: a close look at the process.Journal of genetic counseling · 2013Article
Corrections and comments
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Authors and funding
6 authors at 5 institutions in 1 country.
Funding
Abstract
We assessed whether certain life events contributed to the communication about cancer risk within families who have undergone BRCA1/2 testing. We also explored what type of resources participants would have valued to help in supporting family communication about genetic information. Two hundred and forty-six individuals (218 women, 28 men) who received a BRCA1/2 genetic test result 3 to 10 years earlier (mean of 6.4 years) participated in a telephone interview. Participants were asked about the occurrence of a number of life events (cancer diagnosis, death, uptake of prophylactic surgery, and providing care to a family member with cancer) in their family since their BRCA1/2 test result disclosure and, for each occurrence, whether it fostered family communication about cancer risk. A total of 182 participants (74 %) reported that they or one of their relatives received a cancer diagnosis, 176 (72 %) reported that someone died in their family, and 73 (30 %) stated that they or one of their relatives undertook a prophylactic surgery. During this period, 109 participants (44 %) also provided care for a family member who had cancer. Among participants who reported these life events, family communication was fostered by these events in proportions varying from 50 % (death) to 69 % (cancer diagnosis). Our results indicate that life events may contribute to family communication about cancer risk. Further research is needed to determine whether these events provide a "window of opportunity" to reach family members, address their needs and concerns about cancer, update family cancer history, and introduce genetic counseling and risk assessment.
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Registered trials
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