ArticleJournal of the American Medical Informatics Association : JAMIA2013
Patient-controlled sharing of medical imaging data across unaffiliated healthcare organizations.
Article in Journal of the American Medical Informatics Association : JAMIA, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- What do we know about developing patient portals? a systematic literature review.Journal of the American Medical Informatics Association : JAMIA · 2016Pooled it
- Synergizing Deep Learning-Enabled Preprocessing and Human-AI Integration for Efficient Automatic Ground Truth Generation.Bioengineering (Basel, Switzerland) · 2024Article
- How Image Exchange Breaks Down: the Image Library Perspective.Journal of digital imaging · 2022Article
- New EHR certification requirements and their association with duplicate tests and images.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Feature Extraction Approach for Speaker Verification to Support Healthcare System Using Blockchain Security for Data Privacy.Computational and mathematical methods in medicine · 2022Article
- Privacy-Preserving in Healthcare Blockchain Systems Based on Lightweight Message Sharing.Sensors (Basel, Switzerland) · 2020Article
- The Successful Usage of the DICOM Images Exchange System (ePACS) in the Czech Republic.Applied clinical informatics · 2020Article
- How to Use Blockchain for Diabetes Health Care Data and Access Management: An Operational Concept.Journal of diabetes science and technology · 2019Article
- A Foundation for Enterprise Imaging: HIMSS-SIIM Collaborative White Paper.Journal of digital imaging · 2016Review
- Patient-directed Internet-based Medical Image Exchange: Experience from an Initial Multicenter Implementation.Academic radiology · 2016Article
- Big heart data: advancing health informatics through data sharing in cardiovascular imaging.IEEE journal of biomedical and health informatics · 2015Article
- PACS used while on-call: a national survey of radiology program directors and chief residents.Journal of digital imaging · 2015Article
- Cloud-based hospital information system as a service for grassroots healthcare institutions.Journal of medical systems · 2014Article
- The role of privacy protection in healthcare information systems adoption.Journal of medical systems · 2013Article
- Teamwork in healthcare: Key discoveries enabling safer, high-quality care.The American psychologistReview
- Data governance requirements for distributed clinical research networks: triangulating perspectives of diverse stakeholders.Journal of the American Medical Informatics Association : JAMIAArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundCurrent image sharing is carried out by manual transportation of CDs by patients or organization-coordinated sharing networks. The former places a significant burden on patients and providers. The latter faces challenges to patient privacy.
objectiveTo allow healthcare providers efficient access to medical imaging data acquired at other unaffiliated healthcare facilities while ensuring strong protection of patient privacy and minimizing burden on patients, providers, and the information technology infrastructure.
methodsAn image sharing framework is described that involves patients as an integral part of, and with full control of, the image sharing process. Central to this framework is the Patient Controlled Access-key REgistry (PCARE) which manages the access keys issued by image source facilities. When digitally signed by patients, the access keys are used by any requesting facility to retrieve the associated imaging data from the source facility. A centralized patient portal, called a PCARE patient control portal, allows patients to manage all the access keys in PCARE.
resultsA prototype of the PCARE framework has been developed by extending open-source technology. The results for feasibility, performance, and user assessments are encouraging and demonstrate the benefits of patient-controlled image sharing. DISCUSSION: The PCARE framework is effective in many important clinical cases of image sharing and can be used to integrate organization-coordinated sharing networks. The same framework can also be used to realize a longitudinal virtual electronic health record.
conclusionThe PCARE framework allows prior imaging data to be shared among unaffiliated healthcare facilities while protecting patient privacy with minimal burden on patients, providers, and infrastructure. A prototype has been implemented to demonstrate the feasibility and benefits of this approach.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.