ArticleContemporary clinical trials2012
Socioeconomic determinants associated with willingness to participate in medical research among a diverse population.
Article in Contemporary clinical trials, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
45 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Parental Views of Facilitators and Barriers to Research Participation: Systematic Review.Pediatrics · 2023Pooled it
- Facilitators and barriers of children's participation in nutrition, physical activity, and obesity interventions: A systematic review.Obesity reviews : an official journal of the International Association for the Study of Obesity · 2021Pooled it
- 'Pilot RCT of a new treatment for child conduct problems that have not responded to evidence-based parent training'.PloS one · 2026Trial
- Relationship Between Social Vulnerability Indicators and Trial Participant Attrition: Findings From the HYVALUE Trial.Circulation. Cardiovascular quality and outcomes · 2022Trial
- Nutrition-related claims lead parents to choose less healthy drinks for young children: a randomized trial in a virtual convenience store.The American journal of clinical nutrition · 2022Trial
- Trial
- Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.AJOB empirical bioethicsTrial
- Mapping the path to diversity in clinical trials: a qualitative study of community member and stakeholder perspectives.BMC public health · 2025Article
- Understanding fathers' responses to breastfeeding as a "shared parental task": a realist evaluation of a Danish breastfeeding support intervention.Archives of public health = Archives belges de sante publique · 2025Article
- Understanding parental consent and trust in paediatric LRTI research: insights from a qualitative study in Indonesia.BMC public health · 2025Article
- Bridging the gap: Understanding Latino willingness to participate in public health and clinical trials research across diverse subgroups.Contemporary clinical trials communications · 2025Article
- The role of individual differences and attitude in willingness to participate in TMS studies.Behavior research methods · 2025Article
- Which demographic characteristics are associated with willingness to take part in recontact studies? A cross-sectional study.PloS one · 2025Article
- Effectiveness and costs of the recruitment strategies used in the MetA-Bone trial, a randomized clinical trial to test the effects of soluble corn fiber supplementation for 1 year in children.Contemporary clinical trials · 2024Article
- Attitudes Toward Using and Willingness to Use a Hypothetical Online Sex Communication Intervention for Parents of Sexual and Gender Minority Adolescents.Archives of sexual behavior · 2024Article
- The relationship between trust in federal oversight of vaccine safety and willingness to participate in COVID-19 clinical trials: a repeated measures study of Philadelphia residents (September 2021 - March 2023).BMC public health · 2024Article
- Potential bias and lack of generalizability in electronic health record data: reflections on health equity from the National Institutes of Health Pragmatic Trials Collaboratory.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Strategies to Engage Blacks in Sleep Medicine: Lessons Learned from Three Studies Applying Community-Based Participatory Research Principles.Journal of sleep disorders & therapy · 2023Article
- Exploring ethnic representativeness in diabetes clinical trial enrolment from 2000 to 2020: a chronological survey.Diabetologia · 2022Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
introductionAlthough it is federally-mandated that racial/ethnic minorities be included in research studies, recruiting diverse populations remains a challenge. This is particularly difficult when research involves children. The purpose of this study was to assess attitudes and beliefs toward medical research among a racially and socioeconomically diverse population of parents of school children.
methodsA cross-sectional parent-report survey was conducted in New York City public elementary schools using stratified random selection to obtain a diverse population. Fear of medical research and likelihood to participate in medical research were assessed using a validated questionnaire. Differences in fear/likelihood to participate in research across race/ethnicity and socioeconomic characteristics were evaluated.
resultsIn general, parents were afraid of their child "being treated as a guinea pig", but were willing to allow their child to participate in research if asked by their own doctor. Factors associated with a lower score on fear toward research were; primary language other than English (OR=0.59), access to an interpreter (OR=0.73) and access to medical service within a day (OR=0.51). Latinos had the highest fear score (OR=1.87) compared to Whites. Asians were the ethnic group most likely to participate in research (OR=1.71). Low education level (OR=2.18) and public health insurance (OR=1.37) were associated with a higher score for likelihood of allowing one's child to participate in medical research.
conclusionMinority parents reported more fear of allowing their children to participate in medical research, but were as likely to consent their children's participation, especially if asked by their own physician.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.