ArticlePrimary care respiratory journal : journal of the General Practice Airways Group2012
Strategies for living with the risk of anaphylaxis in adolescence: qualitative study of young people and their parents.
Article in Primary care respiratory journal : journal of the General Practice Airways Group, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Risk Perception in Food Allergy Sufferers: An Evolutionary Concept Analysis.Journal of food science · 2026Review
- Identifying patients at risk of anaphylaxis.The World Allergy Organization journal · 2024Review
- Beliefs about food allergies in adolescents aged 11-19 years: A systematic review.Clinical and translational allergy · 2022Review
- Childrens' and Parents' Willingness to Join a Smartphone-Based Emergency Response Community for Anaphylaxis: Survey.JMIR mHealth and uHealth · 2019Article
- GRADE-ing the Benefit/Risk Equation in Food Immunotherapy.Current allergy and asthma reports · 2019Review
- Age-Based Causes and Clinical Characteristics of Immediate-Type Food Allergy in Korean Children.Allergy, asthma & immunology research · 2017Article
- "If we are waiting for the numbers alone, we will miss the point": a qualitative study of the perceived rise of food allergy and associated risk factors in the Greater Accra Region, Ghana.Global health research and policy · 2017Article
- Health Related Quality of Life among schoolchildren aged 12-13 years in relation to food hypersensitivity phenotypes: a population-based study.Clinical and translational allergy · 2017Article
- How to manage anaphylaxis in primary care.Clinical and translational allergy · 2017Review
- Anaphylaxis in the community: a questionnaire survey of members of the UK Anaphylaxis Campaign.JRSM open · 2015Article
- Epinephrine auto-injector prescriptions to food-allergic patients in primary care in The Netherlands.Allergy, asthma, and clinical immunology : official journal of the Canadian Society of Allergy and Clinical Immunology · 2015Article
- Living with severe allergy: an Anaphylaxis Campaign national survey of young people.Clinical and translational allergy · 2013Article
- Adolescents and anaphylaxis.Primary care respiratory journal : journal of the General Practice Airways Group · 2012Article
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Authors and funding
4 authors.
Funding
Abstract
backgroundAdolescents with anaphylaxis are at increased risk of fatal outcomes. Gaps in their knowledge of day-to-day and emergency management have been identified. There are also gaps in services available to support adolescents at risk of anaphylaxis.
aimsTo explore the experiences and healthcare needs of adolescents living with the risk of anaphylaxis; to understand the perspectives of their parents; and to look at how care might be improved.
methodsA qualitative study was undertaken using in-depth interviews with adolescents with a recent history of severe allergic reactions and with their parents.
resultsTwenty-six adolescents at risk of anaphylaxis living in Scotland and their parents (n=28) were recruited. Most anaphylactic reactions reported by participants appeared to result from accidents, misinformation, or inexperience. For many, management involved finding a balance between taking their allergies seriously whilst not allowing these concerns to dominate their lives. Risks were often difficult to judge, with reactions sometimes taking place even after careful checking of meal ingredients. Most admitted taking some risks with trace-labelled foods. Appropriate healthcare support for adolescents in learning to manage the risk of anaphylaxis independently and advice and support for their parents was inconsistently provided.
conclusionsAdolescents tend to see their risk management strategies as 'good enough', but these strategies were often inconsistent with clinical best practice and, in some cases, had not prevented reactions. Building on adolescents' existing skills and knowledge and the use of Internet and associated social media resources may help to support more effective self-management among adolescents.
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