Evidence map›Paper›PMID 22869324›Full record

ReviewClinical child and family psychology review2012

Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation.

Jeffrey S Karst, Amy Vaughan Van Hecke

Registry-linked trialAbstract readReview
PubMed Publisher
In one paragraph

Review in Clinical child and family psychology review, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02250339 (Phase 2), which is not on this map. Cited by 315 papers, 13 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
315citing papers in PubMed, 13 pooled it
37.1field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02250339 completednot on this mapstarted 2013, after this paper: background citation

Phase 2: A Prospective Observational Study of Feasibility and Tentative Effectiveness of Multi-Systemic and Multicomponent Family-Based Intervention for Families of Children With Neuropsychiatric and/or Psychiatric Disorder(s).

TypeobservationalSponsorSocial Insurance Institution, FinlandRan2013 to 2018Enrolled230ConditionsADHD, Asperger Syndrome, Child Behavior DisordersArmsLAKU family program, Etä-LAKU family program, Family therapy
3 · Its place in the literature

Who cites it

315 citing papers in PubMed, 13 syntheses or guidelines pooled it, 915 citations in OpenAlex.

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  14. Trial
  15. Seeing the Child Within: A Randomized Controlled Trial of Reflective Functioning Intervention for Parents of Autistic Children.Autism research : official journal of the International Society for Autism Research · 2026
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255 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 1 institution in 1 country.

Jeffrey S KarstMarquette University, Milwaukee, WI 53201, USA jeffrey.karst@mu.edu
Amy Vaughan Van Hecke
Marquette University · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Raising a child with an autism spectrum disorder (ASD) can be an overwhelming experience for parents and families. The pervasive and severe deficits often present in children with ASD are associated with a plethora of difficulties in caregivers, including decreased parenting efficacy, increased parenting stress, and an increase in mental and physical health problems compared with parents of both typically developing children and children with other developmental disorders. In addition to significant financial strain and time pressures, high rates of divorce and lower overall family well-being highlight the burden that having a child with an ASD can place on families. These parent and family effects reciprocally and negatively impact the diagnosed child and can even serve to diminish the positive effects of intervention. However, most interventions for ASD are evaluated only in terms of child outcomes, ignoring parent and family factors that may have an influence on both the immediate and long-term effects of therapy. It cannot be assumed that even significant improvements in the diagnosed child will ameliorate the parent and family distress already present, especially as the time and expense of intervention can add further family disruption. Thus, a new model of intervention evaluation is proposed, which incorporates these factors and better captures the transactional nature of these relationships.

Indexed as

Family RelationsParent-Child RelationsAdaptation, PsychologicalAdolescentAdultBehavior TherapyCaregiversChildChild Development Disorders, PervasiveEarly Intervention, EducationalHumansParentingParentsSelf EfficacySibling RelationsSocial Support

Identifiers

PMID22869324
OpenAlexW1992376862

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.