Evidence map›Paper›PMID 22860383›Full record

ArticleJournal of palliative care2012

Palliative and end-of-life care in Newfoundland's deaf community.

Victor Maddalena, Fiona O'Shea, Myles Murphy

Abstract read
In one paragraph

Article in Journal of palliative care, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
1.2field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 28 citations in OpenAlex.

  1. Exploring the health literacy status of people with hearing impairment: a systematic review.Archives of public health = Archives belges de sante publique · 2023
    Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Article
  6. Review
  7. Hearing loss in palliative care.Journal of palliative medicine · 2015
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 2 institutions in 1 country.

Victor MaddalenaFaculty of Medicine, Division of Community Health and Humanities, Health Sciences Centre, Memorial University ofNewfoundland, 300 Prince Philip Drive Room 2849, St. John's, Newfoundland and Labrador, Canada. victor.maddalena@med.mun.ca
Fiona O'Shea
Myles Murphy
Memorial University of Newfoundland · CANewfoundland and Labrador Centre for Applied Health Research · CA

Funding

CIHR 80067-1
6 · The paper itself

Abstract

The deaf community is a distinct cultural and linguistic community (the uppercase D is a cultural identification). Compared to the general population, the deaf community, as a social group, experiences poorer health status. Deaf people seek care less frequently than the general population and have fewer interactions with the health system. Their encounters with the health system are often characterized by communication difficulties, fear, mistrust, and frustration. Qualitative research was used to explore the experiences of family caregivers who provided end-of-life care for a deaf person. Key findings indicate that the deaf community has limited understanding of their options for palliative and end-of-life care. Communication and health literacy are key barriers to accessing appropriate end-of-life care. Pain and symptom management, consideration of physical environments, and limited access to bereavement care are common issues faced by deaf people when caring for loved ones at the end of life.

Indexed as

Health Services Needs and DemandPalliative CareTerminal CareCommunicationDeafnessFemaleHumansInterviews as TopicMaleNewfoundland and LabradorQualitative Research

Identifiers

PMID22860383
PMCPMC4894815
OpenAlexW22603974

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.