ArticleJournal of genetic counseling2013
Enhancing family communication about genetics: ethical and professional dilemmas.
Article in Journal of genetic counseling, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.Genetics in medicine : official journal of the American College of Medical Genetics · 2016Pooled it
- How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence.European journal of human genetics : EJHG · 2016Pooled it
- Design and Feasibility of an Intervention to Support Cancer Genetic Counselees in Informing their At-Risk Relatives.Journal of genetic counseling · 2016Trial
- Outcomes of a randomised controlled trial of a complex genetic counselling intervention to improve family communication.European journal of human genetics : EJHG · 2016Trial
- Informing relatives about their hereditary or familial cancer risk: study protocol for a randomized controlled trial.Trials · 2014Trial
- Genetic Counseling Facilitates Family Communication of Genetic Risks.Acta medica Philippina · 2025Article
- The DCM Project Portal: A direct-to-participant platform of The DCM Research Project.American heart journal plus : cardiology research and practice · 2024Article
- The DCM Project Portal: A direct-to-participant platform of The DCM Research Project.medRxiv : the preprint server for health sciences · 2023Article
- The Communication Chain of Genetic Risk: Analyses of Narrative Data Exploring Proband-Provider and Proband-Family Communication in Hereditary Breast and Ovarian Cancer.Journal of personalized medicine · 2022Article
- Communal Coping as a Strategy to Enhance Family Engagement in Dilated Cardiomyopathy.Circulation. Genomic and precision medicine · 2022Review
- Opinions and experiences of recontacting patients: a survey of Australasian genetic health professionals.Journal of community genetics · 2022Article
- Factors that Influence Intent to Share Genetic Information Related to Cancer Risk with Family Members.Journal of health communication · 2021Article
- Disclosure to genetic relatives without consent - Australian genetic professionals' awareness of the health privacy law.BMC medical ethics · 2020Article
- Family Communication Patterns and Challenges of Huntington's Disease Risk, the Decision to Pursue Presymptomatic Testing, and Test Results.Journal of Huntington's disease · 2020Article
- Discussions about predictive genetic testing for Lynch syndrome: the role of health professionals and families in decisions to decline.Familial cancer · 2018Article
- Experience of Asian males communicating cardiac genetic risk within the family.Journal of community genetics · 2018Article
- The challenges of the expanded availability of genomic information: an agenda-setting paper.Journal of community genetics · 2018Article
- Counseling Close to Home: Genetic Counselors' Experiences with their own Family Members.Journal of genetic counseling · 2018Article
- Beyond individualism: Is there a place for relational autonomy in clinical practice and research?Clinical ethics · 2017Article
- Supporting disclosure of genetic information to family members: professional practice and timelines in cancer genetics.Familial cancer · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
When a new genetic condition is diagnosed within a family, genetic counselors often describe a sense of responsibility towards other at risk family members to be appropriately informed about their status. Successful communication of genetic information in families is contingent on many factors. While a small number of probands directly state their intention not to inform their relatives, many who do intend to communicate this information appear to be unsuccessful for a wide range of reasons and may benefit from follow up support from a genetic counselor. Drawing on the reciprocal-engagement model (REM) of genetic counseling practice we explore how enhancing family communication about genetics raises a number of ethical and professional challenges for counselors-and describe how we resolved these. A subsequent manuscript will describe the counseling framework we have developed to enhance family communication about genetics.
Indexed as
Identifiers
22833230What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.