ArticlePediatric nephrology (Berlin, Germany)2012
Quality of life in children with end-stage renal disease based on a PedsQL ESRD module.
Article in Pediatric nephrology (Berlin, Germany), 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
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Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The psychosocial factors influencing paediatric kidney transplantation access, their outcomes and the patient and family's perceived quality of life: a systematic review and meta-analysis.Pediatric nephrology (Berlin, Germany) · 2026Pooled it
- Adequacy of dialysis in children and adolescents: more than just Kt/V.Pediatric nephrology (Berlin, Germany) · 2026Review
- Health-Related Quality of Life in Children with Steroid-Resistant Nephrotic Syndrome.Sultan Qaboos University medical journal · 2025Article
- Predictors of self-care in kidney transplant patients according to preoperative dialysis: A comparative study.Heliyon · 2024Article
- Social determinants of health and quality of life in children with chronic kidney disease: insights from Saudi Arabia.BMC nephrology · 2024Observational
- Article
- Predictive Factors of Renal Graft Failure in Tunisian Children and young adults: A Retrospective Study.La Tunisie medicale · 2024Article
- Longitudinal changes of health-related quality of life in childhood chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2023Article
- Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs-a scoping review.BMC palliative care · 2023Article
- Fatigue and Quality of Life in Children with Chronic Kidney Disease.Children (Basel, Switzerland) · 2022Article
- Health-related quality of life in children with immunoglobulin A nephropathy - results of a multicentre national study.Archives of medical science : AMS · 2021Article
- A longitudinal analysis of the effect of anemia on health-related quality of life in children with mild-to-moderate chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2020Article
- Health-related quality of life in Egyptian children with nephrotic syndrome.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Psychosocial considerations and recommendations for care of pediatric patients on dialysis.Pediatric nephrology (Berlin, Germany) · 2020Review
- Health-related quality of life changes following renal transplantation in children.Pediatric transplantation · 2019Article
- Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018Article
- Is there such a thing as biocompatible peritoneal dialysis fluid?Pediatric nephrology (Berlin, Germany) · 2017Review
- Quality of life in children with chronic kidney disease.Pediatric nephrology (Berlin, Germany) · 2016Article
- Health-related quality of life in patients with pediatric onset of end-stage renal disease: state of the art and recommendations for clinical practice.Pediatric nephrology (Berlin, Germany) · 2016Review
- Gaining the Patient Reported Outcomes Measurement Information System (PROMIS) perspective in chronic kidney disease: a Midwest Pediatric Nephrology Consortium study.Pediatric nephrology (Berlin, Germany) · 2014Article
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Authors and funding
11 authors.
Funding
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Abstract
backgroundHealth-related quality of life (HRQOL) is an essential subject for children with end-stage renal disease (ESRD) and their families.
methodsWe performed a cross-sectional investigation of HRQOL in children undergoing renal replacement therapies, such as dialysis and renal transplantation, using the 34-item Pediatric Quality of Life Inventory 3.0 End-Stage Renal Disease (PedsQL 3.0 ESRD) module. We assessed 92 ESRD patients aged 2-18 from four Korean university hospitals.
resultsThe male:female ratio was 44:48, and the most common cause of ESRD was chronic glomerulonephritis. Fifty-five children were treated by dialysis, and 37 received renal transplantation. Transplant patients had better HRQOL than dialysis patients in two domains in parent proxy reports: "About my kidney disease" and "Worry." In child self-reports, transplant patients had better HRQOL than dialysis patients in one domain: Treatment problems. However, there were no significant differences in total QOL scores between peritoneal dialysis (PD) and transplant patients in child self-reports. In addition, there were differences in the ESRD module scores between child self- and parent proxy reports. Children usually reported better QOL than their parents. Child self-reports showed significantly higher QOL scores than parent proxy reports in the domains of General fatigue, Family & peer interaction, and Worry. Children on PD self-reported a significantly higher QOL than children on hemodialysis (HD).
conclusionsThe PedsQL 3.0 ESRD module may be useful as an ESRD-specific instrument to evaluate HRQOL in children; however, a larger, longitudinal prospective study is warranted.
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