Trial reportBMC neurology2012
Health-related quality of life and strain in caregivers of Australians with Parkinson's disease: an observational study.
Trial report in BMC neurology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Health-related quality of life in Parkinson's disease: systematic review and meta-analysis of EuroQol (EQ-5D) utility scores.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Pooled it
- The impact of caregiving on quality of life in Parkinson's disease: A systematic review.International journal of geriatric psychiatry · 2023Pooled it
- A narrative review of clinical and non-clinical determinants of health-related quality of life in advanced Parkinson's disease.Journal of neural transmission (Vienna, Austria : 1996) · 2026Review
- A single centre prospective study of three device-assisted therapies for Parkinson's disease.NPJ Parkinson's disease · 2023Article
- Association of caregiver strain with the trajectory of quality of life in Parkinson's disease.Parkinsonism & related disorders · 2023Article
- Burden of caregiving for cardiovascular dysautonomia in Parkinson's disease.Clinical autonomic research : official journal of the Clinical Autonomic Research Society · 2022Article
- Health-Related Quality of Life for Parkinson's Disease Patients and Their Caregivers.Journal of movement disorders · 2021Article
- Burden of illness in not adequately controlled chronic hypoparathyroidism: Findings from a 13-country patient and caregiver survey.Clinical endocrinology · 2020Article
- Patient and care partner views on exercise and structured physical activity for people with Progressive Supranuclear Palsy.PloS one · 2020Article
- Parkinson's Disease Caregiver Strain in Singapore.Frontiers in neurology · 2020Article
- Unmet needs of caregivers of individuals referred to a dementia care program.Journal of the American Geriatrics Society · 2015Observational
- Understanding the Burden on Caregivers of People with Parkinson's: A Scoping Review of the Literature.Rehabilitation research and practice · 2014Article
- Health-related quality of life in Parkinson's disease patients in northeastern Sicily, Italy: (An ecological perspective).Neural regeneration research · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe relationship between health-related quality of life (HRQoL) in people with Parkinson's disease and their caregivers is little understood and any effects on caregiver strain remain unclear. This paper examines these relationships in an Australian sample.
methodsUsing the generic EuroQol (EQ-5D) and disease-specific Parkinson's Disease Questionnaire-39 Item (PDQ-39), HRQoL was evaluated in a sample of 97 people with PD and their caregivers. Caregiver strain was assessed using the Modified Caregiver Strain Index. Associations were evaluated between: (i) caregiver and care-recipient HRQoL; (ii) caregiver HRQoL and caregiver strain, and; (iii) between caregiver strain and care-recipient HRQoL.
resultsNo statistically significant relationships were found between caregiver and care-recipient HRQoL, or between caregiver HRQoL and caregiver strain. Although this Australian sample of caregivers experienced relatively good HRQoL and moderately low strain, a significant correlation was found between HRQoL of people with PD and caregiver strain (rho 0.43, p < .001).
conclusionPoor HRQoL in people with PD is associated with higher strain in caregivers. Therapy interventions may target problems reported as most troublesome by people with PD, with potential to reduce strain on the caregiver.
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Registered trials
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