ArticleThe Journal of asthma : official journal of the Association for the Care of Asthma2012
An analysis of contextual information relevant to medical care unexpectedly volunteered to researchers by asthma patients.
Article in The Journal of asthma : official journal of the Association for the Care of Asthma, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01128348 (A Patient Advocate and Literacy-Based Treatment of Asthma), which is not on this map. Cited by 6 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Patient Advocate and Literacy-Based Treatment of Asthma
Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views.NPJ primary care respiratory medicine · 2017Pooled it
- Exploring Patient Engagement: A Qualitative Analysis of Low-Income Urban Participants in Asthma Research.The journal of allergy and clinical immunology. In practiceTrial
- Knowledge, perceptions, facilitators, and barriers towards asthma self-management among patients: A systematic review of the literature.Exploratory research in clinical and social pharmacy · 2025Review
- Clinic navigation and home visits to improve asthma care in low income adults with poorly controlled asthma: Before and during the pandemic.Contemporary clinical trials · 2022Article
- Understanding the journeys of patients with an asthma exacerbation requiring urgent therapy at a primary care clinic.BMC pulmonary medicine · 2022Article
- Barriers to implementing asthma self-management in Malaysian primary care: qualitative study exploring the perspectives of healthcare professionals.NPJ primary care respiratory medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectiveTo describe and categorize contextual information relevant to patients' medical care unexpectedly volunteered to research personnel as part of a patient advocate (PA) intervention to facilitate access health care, communication with medical personnel, and self-management of a chronic disease such as asthma.
methodsWe adapted a patient navigator intervention, to overcome barriers to access and communication for adults with moderate or severe asthma. Informed by focus groups of patients and providers, our PAs facilitated preparation for a visit with an asthma provider, attended the visit, confirmed understanding, and assisted with post-visit activities. During meetings with researchers, either for PA activities or for data collection, participants frequently volunteered personal and medical information relevant for achieving successful self-management that was not routinely shared with medical personnel. For this project, researchers journaled information not captured by the structured questionnaires and protocol. Using a qualitative analysis, we describe (1) researchers' journals of these unique communications; (2) their relevance for accomplishing self-management; (3) PAs' formal activities including teach-back, advocacy, and facilitating appointment making; and (4) observations of patients' interactions with the clinical practices.
resultsIn 83 journals, patients' social support (83%), health (68%), and deportment (69%) were described. PA assistance with navigating the medical system (59%), teach-back (46%), and observed interactions with patient and medical staff (76%) were also journaled. Implicit were ways patients and practices could overcome barriers to access and communication.
conclusionsThese journals describe the importance of seeking contextual and medically relevant information from all patients and, especially, those with significant morbidities, prompting patients for barriers to access to health care, and confirming understanding of medical information.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.