ArticleHealth expectations : an international journal of public participation in health care and health policy2014
Choosing dialysis modality: decision making in a chronic illness context.
Article in Health expectations : an international journal of public participation in health care and health policy, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 6 of them syntheses that pooled it.
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Who cites it
40 citing papers in PubMed, 6 syntheses or guidelines pooled it, 84 citations in OpenAlex.
- Decisional Conflicts in Kidney Replacement Therapy for Patients With Grade 5 Chronic Kidney Disease: A Qualitative Meta-Synthesis.Journal of renal care · 2025Pooled it
- Pooled it
- Factors promoting shared decision-making in renal replacement therapy for patients with end-stage kidney disease: systematic review and qualitative meta-synthesis.International urology and nephrology · 2022Pooled it
- Psychosocial factors affecting patients with end-stage kidney disease and the impact of the social worker.Journal of nephrology · 2022Pooled it
- Kidney disease pathways, options and decisions: an environmental scan of international patient decision aids.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2020Pooled it
- Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.BMJ open · 2018Pooled it
- Kidney-therapy decision-making among older adults and caregivers: treatment beliefs, prognostic information, and health priorities.BMC nephrology · 2025Article
- Perspectives of adult advanced pre-dialysis chronic kidney disease patients about kidney replacement therapy in three referral hospitals in Rwanda.BMC nephrology · 2025Article
- Integrating Clinical Reasoning Into a Patient Decision Aid for People Making Conservative Kidney Management and Dialysis Decisions: A User-Centered Intervention Development Design.Kidney medicine · 2025Article
- The role of peer support in coping and adjustment to dialysis and transplantation: Study protocol.PloS one · 2025Article
- Barriers and facilitators for the adoption of peritoneal dialysis: protocol for a systematic review of qualitative studies.BMJ open · 2024Article
- Decision aids to assist patients and professionals in choosing the right treatment for kidney failure.Clinical kidney journal · 2023Review
- Choice of the Dialysis Modality: Practical Considerations.Journal of clinical medicine · 2023Review
- Peritoneal dialysis after shared decision-making: the disparity between reality and patient expectations.BMC nursing · 2022Article
- Article
- Development of an online patient decision aid for kidney failure treatment modality decisions.BMC nephrology · 2022Article
- Improving management of needle distress during the journey to dialysis through psychological education and training-the INJECT study feasibility pilot protocol.Pilot and feasibility studies · 2022Article
- The patient experience of hemodialysis vascular access decision-making.The journal of vascular access · 2021Article
- Impacts of Interaction of Mental Condition and Quality of Life between Donors and Recipients at Decision-Making of Preemptive and Post-Dialysis Living-Donor Kidney Transplantation.Journal of personalized medicine · 2021Article
- Comparison of shared decision making in patients undergoing hemodialysis and peritoneal dialysis for choosing a dialysis modality.BMC nephrology · 2021Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients with chronic kidney disease (CKD) are encouraged to make an informed decision about dialysis. Survival rates for dialysis are equivalent yet there is wide variation in peritoneal dialysis uptake in the adult UK population. It is unclear how much is attributable to variations in patients' preferences. Kidney function usually declines over months and years; few studies have addressed how a chronic illness context affects choice. This study describes patients' decision making about dialysis and understands how the experience of CKD is associated with treatment choice.
methodSurvey employing interview methods explored 20 patients' views and experiences of making their dialysis choice. Data were analysed using thematic framework analysis to provide descriptive accounts of how patients experienced their illness and made treatment decisions.
resultsPatients talked about challenges of living with CKD. Patients were provided with lots of information about treatment options in different formats. Patients did not distinguish between different types of dialysis and/or have an in-depth knowledge about options. Patients did not talk about dialysis options as a choice but rather as a treatment they were going to have.
conclusionMost patients perceived their choice as between 'dialysis' and 'no dialysis'. They did not perceive themselves to be making an active choice. Possibly, patients feel they do not need to engage with the decision until symptomatic. Despite lots of patient information, there were more opportunities to encounter positive information about haemodialysis. A more proactive approach is required to enable patients to engage fully with the dialysis treatment options.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.