ArticleHealth expectations : an international journal of public participation in health care and health policy2014
Decision influences and aftermath: parents, stillbirth and autopsy.
Article in Health expectations : an international journal of public participation in health care and health policy, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it, 42 citations in OpenAlex.
- Experiences and needs of family members of perinatal infant deaths: a meta-synthesis.Frontiers in public health · 2025Pooled it
- Factors affecting uptake of postmortem examination in the prenatal, perinatal and paediatric setting.BJOG : an international journal of obstetrics and gynaecology · 2018Pooled it
- Advancing neonatal autopsy by strengthening physician belief and fostering effective family communication.Pediatric research · 2025Review
- Facilitators and barriers to implementing and sustaining facility-based stillbirth reviews in India: a qualitative study.BMC pregnancy and childbirth · 2025Article
- Factors Contributing to Uptake of Stillbirth Evaluations: A Qualitative Analysis.BJOG : an international journal of obstetrics and gynaecology · 2025Article
- Understanding the clinical utility of stillbirth investigations: a scoping review.BMC pregnancy and childbirth · 2025Article
- Article
- Creating a postmortem examination decision aid: Suggestions from bereaved parents of a stillborn.Patient education and counseling · 2023Article
- Maternity Healthcare Chaplains and Perinatal Post-Mortem Support and Understanding in the United Kingdom and Ireland: An Exploratory Study.Journal of religion and health · 2021Article
- Findings in Stillbirths Associated with Placental Disease.American journal of perinatology · 2020Article
- Perinatal post-mortem ultrasound (PMUS): radiological-pathological correlation.Insights into imaging · 2019Review
- A Learning Loop Model of Collaborative Decision-Making in Chronic Illness.Academic pediatrics · 2019Article
- An audit of healthcare professionals' knowledge regarding perinatal autopsy.Irish journal of medical science · 2019Article
- Perceptions of health professionals regarding minimally invasive tissue sampling (MITS) to identify the cause of death in stillbirths and neonates: results from a qualitative study.Maternal health, neonatology and perinatology · 2019Article
- Socio-anthropological methods to study the feasibility and acceptability of the minimally invasive autopsy from the perspective of local communities: lessons learnt from a large multi-centre study.Global health action · 2019Article
- Article
- Evaluation of an international educational programme for health care professionals on best practice in the management of a perinatal death: IMproving Perinatal mortality Review and Outcomes Via Education (IMPROVE).BMC pregnancy and childbirth · 2016Article
- Parental decision making around perinatal autopsy: a qualitative investigation.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Autopsy in a neonatal intensive care unit: do we still need it in 2022?Jornal de pediatriaArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 5 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundStillbirth, among the most distressing experiences an adult may face, is also a time when parents must decide whether an autopsy or other post-mortem examinations will be performed on their infant. Autopsies can reveal information that might help explain stillbirth, yet little is known about how people make this difficult decision.
objectivesThis study examines the influences on decisions about autopsy after stillbirth among Australian parents.
designThe study involved secondary analysis of transcripts of three focus groups using qualitative content analysis. PARTICIPANTS AND
settingSeventeen parents of 14 stillborn babies participated in consultations around the revision of a perinatal mortality audit guideline.
resultsParents shared the decision making. Four decision drivers were identified: parents' preparedness or readiness to make decisions; parental responsibility; concern for possible consequences of an autopsy and the role of health professionals. Each decision driver involved reasons both for and against autopsy. Two decision aftermath were also present: some parents who agreed to an autopsy were dissatisfied with the way the autopsy results were given to them and some parents who did not have an autopsy for their infant expressed some form of regret or uncertainty about the choice they made.
conclusionsTo make decisions about autopsy after stillbirth, parents need factual information about autopsy procedures, recognition that there might be fear of blame, an environment of trust, and health services and professionals prepared and skilled for difficult conversations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.