ArticleGenome biology2012
Power to the people: a wiki-governance model for biobanks.
Article in Genome biology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Towards a Design Toolkit of Informed Consent Models Across Fields: A Systematic Review.Science and engineering ethics · 2022Pooled it
- Trusted partners, community priorities, and data protections: requirements for precision medicine research with Alaska Native peoples.Journal of community genetics · 2025Article
- Establishing a Pregnancy Lyme Disease Biobank.Methods in molecular biology (Clifton, N.J.) · 2024Article
- What does engagement mean to participants in longitudinal cohort studies? A qualitative study.BMC medical ethics · 2021Article
- Public awareness of and attitudes towards research biobanks in Latvia.BMC medical ethics · 2020Article
- The challenges of the expanded availability of genomic information: an agenda-setting paper.Journal of community genetics · 2018Article
- Dynamic Consent: a potential solution to some of the challenges of modern biomedical research.BMC medical ethics · 2017Article
- A framework for public involvement at the design stage of NHS health and social care research: time to develop ethically conscious standards.Research involvement and engagement · 2017Article
- Community recommendations on biobank governance: Results from a deliberative community engagement in California.PloS one · 2017Article
- Between Openness and Privacy in Genomics.PLoS medicine · 2016Review
- Community engagement with genetics: public perceptions and expectations about genetics research.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking.PloS one · 2015Article
- Evaluating the consent preferences of UK research volunteers for genetic and clinical studies.PloS one · 2015Article
- Consulting the community: public expectations and attitudes about genetics research.European journal of human genetics : EJHG · 2013Article
- Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?European journal of human genetics : EJHG · 2013Article
- All the post-genomic world is a stage: the actors and narrators required for translating pharmacogenomics into public health.Personalized medicine · 2013Article
- 'Born in Michigan? You're in the biobank': engaging population biobank participants through Facebook advertisements.Public health genomics · 2013Article
- Designing a post-genomics knowledge ecosystem to translate pharmacogenomics into public health action.Genome medicine · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.