ArticleAmerican journal of public health2012
Research participation as work: comparing the perspectives of researchers and economically marginalized populations.
Article in American journal of public health, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed.
- Trial
- Community-Based Point-of-Diagnosis Hepatitis C Treatment for Marginalized Populations: A Nonrandomized Controlled Trial.JAMA network open · 2023Article
- Article
- Level and correlates of social support in a community-based sample of Australians who primarily smoke methamphetamine.Health & social care in the community · 2022Article
- HIV awareness, pre-exposure prophylaxis perceptions and experiences among people who exchange sex: qualitative and community based participatory study.BMC public health · 2022Article
- Lessons Learned by Collaborating with Structurally Vulnerable Veterans via a Veterans Engagement Group.Journal of general internal medicine · 2022Article
- Understanding Willingness to Participate in HIV Biomedical Research: A Mixed Methods Investigation.AIDS and behavior · 2021Article
- "He's under oath": Privacy and Confidentiality Views Among People Who Inject Drugs Enrolled in a Study of Social Networks and Human Immunodeficiency Virus/Hepatitis C Virus Risk.Journal of empirical research on human research ethics : JERHRE · 2021Article
- Barriers and motivators to participation and retention in HIV/HCV cohort studies among people who inject drugs: a community consultation in Iran.Substance abuse treatment, prevention, and policy · 2020Article
- Principles of research ethics: A research primer for low- and middle-income countries.African journal of emergency medicine : Revue africaine de la medecine d'urgence · 2020Article
- "Money Helps": People who inject drugs and their perceptions of financial compensation and its ethical implications.Ethics & behavior · 2019Article
- The perspectives of structurally vulnerable people who use drugs on volunteer stipends and work experiences provided through a drug user organization: Opportunities and limitations.The International journal on drug policy · 2018Article
- Article
- "We're giving you something so we get something in return": Perspectives on research participation and compensation among people living with HIV who use drugs.The International journal on drug policy · 2017Article
- Uptake of Community-Based Peer Administered HIV Point-of-Care Testing: Findings from the PROUD Study.PloS one · 2016Article
- Enhancing the Ethical Conduct of HIV Research with Migrant Sex Workers: Human Rights, Policy, and Social Contextual Influences.PloS one · 2016Article
- Establishing a community-based participatory research partnership among people who use drugs in Ottawa: the PROUD cohort study.Harm reduction journal · 2014Article
- "I can't do this, it's too much": building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers.International journal of public health · 2014Article
- Confidentiality, privacy, and respect: experiences of female sex workers participating in HIV research in Andhra Pradesh, India.Journal of empirical research on human research ethics : JERHRE · 2014Article
- Structural and Interpersonal Benefits and Risks of Participation in HIV Research: Perspectives of Female Sex Workers in Guatemala.Ethics & behaviorArticle
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
We examined the historical and regulatory framework of research with human participants in the United States, and described some possible unintended consequences of this framework in the context of paying young injection drug users for their time participating in behavioral and medical research. We drew upon our own experiences while conducting a long-running epidemiological study of hepatitis C virus infection. We found that existing ethical and regulatory framings of research participation may lead to injustices from the perspectives of research participants. We propose considering research participation as a specialized form of work and the use of community advisory boards to facilitate discussion about appropriate compensation for research participation among economically marginalized populations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.