ArticleJournal of palliative care2012
End-of-life discussions and advance care planning for children on long-term assisted ventilation with life-limiting conditions.
Article in Journal of palliative care, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 30 citations in OpenAlex.
- Parental Goals of Care for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Planning Conversations.The American journal of hospice & palliative care · 2026Article
- Pediatric acute respiratory distress syndrome in children with type I - spinal muscular atrophy: a 12-year case series.European journal of pediatrics · 2025Article
- Content and Comprehensiveness of Goals-of-Care Documentation in Pediatric Patients.Journal of pain and symptom management · 2025Article
- Healthcare professionals' discussion of loss and grief with parents of children with life-limiting severe neurological impairment: Findings from a scoping review.Palliative & supportive care · 2025Article
- Pediatric Advance Care Planning: A Scoping Review.Children (Basel, Switzerland) · 2023Article
- "More life and more days"-patient and care characteristics in a specialized acute pediatric palliative care inpatient unit.European journal of pediatrics · 2023Article
- Bereaved Parent Perspectives on the Benefits and Burdens of Technology Assistance among Children with Complex Chronic Conditions.Journal of palliative medicine · 2022Article
- Determining Goals of Care During the COVID-19 Pandemic: A Virtual Course for Emergency Medicine Residents.Cureus · 2021Article
- A systematic concept analysis of 'technology dependent': challenging the terminology.European journal of pediatrics · 2021Review
- Lifetime Care of Duchenne Muscular Dystrophy.Sleep medicine clinics · 2020Review
- The importance of advance care planning for children with chronic respiratory failure.Pediatric pulmonology · 2020Article
- Assessment of Bereaved Caregiver Experiences of Advance Care Planning for Children With Medical Complexity.JAMA network open · 2020Article
- "Will You Remember Me?": Talking with Adolescents About Death and Dying.Child and adolescent psychiatric clinics of North America · 2018Article
- Advance care planning and outcome in pediatric palliative home care.Oncotarget · 2018Article
- "Hope for the best, prepare for the worst": A qualitative interview study on parents' needs and fears in pediatric advance care planning.Palliative medicine · 2017Article
- Keeping all options open: Parents' approaches to advance care planning.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Long-term mechanical ventilation and transitions in care: A narrative review.Chronic respiratory diseaseReview
- Characteristics of Pediatric Patients With Home Mechanical Ventilation in a Japanese Regional Core Hospital.Pediatrics international : official journal of the Japan Pediatric SocietyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
Families of children with life-limiting conditions who are on long-term assisted ventilation need to undertake end-of-life advance care planning (ACP) in order to align their goals and values with the inevitability of their child's condition and the risks it entails. To discuss how best to conduct ACP in this population, we performed a retrospective analysis of end-of-life discussions involving our deceased ventilator-assisted patients between 1987 and 2009. A total of 34 (72 percent) of 47 study patients were the subject of these discussions; many discussions occurred after acute deterioration. They resulted in directives to forgo or limit interventions for 21 children (45 percent). We surmise that many families were hesitant to discuss end-of-life issues during periods of relative stability. By offering anticipatory guidance and encouraging contemplation of patients' goals both in times of stability and during worsening illness, health care providers can better engage patients' families in ACP. As the child's condition progresses, the emphasis can be recalibrated. How families respond to such encouragement can also serve as a gauge of their willingness to pursue ACP.
Indexed as
Identifiers
22582468PMC3682656W93494520What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.