ArticleJournal of acquired immune deficiency syndromes (1999)2012
Measuring HIV self-management in women living with HIV/AIDS: a psychometric evaluation study of the HIV Self-management Scale.
Article in Journal of acquired immune deficiency syndromes (1999), 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 33 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
33 citing papers in PubMed, 1 synthesis or guideline pooled it, 54 citations in OpenAlex.
- HIV-Specific Reported Outcome Measures: Systematic Review of Psychometric Properties.JMIR public health and surveillance · 2022Pooled it
- Differential Effects of Substance Use on HIV Care and Symptom Outcomes: A Longitudinal Analysis Among People with HIV.AIDS patient care and STDs · 2025Trial
- The effect of a combined mHealth and community health worker intervention on HIV self-management.Journal of the American Medical Informatics Association : JAMIA · 2025Trial
- Developing an app-based self-management program for people living with HIV: a randomized controlled pilot study during the COVID-19 pandemic.Scientific reports · 2022Trial
- Development and validation of a self-management questionnaire for people living with HIV in low- and middle-income countries (HIV-SM LMIC tool).BMC infectious diseases · 2025Article
- Article
- Factor structure of the HIV-SM LMIC self-management questionnaire for people living with HIV in low- and middle-income countries.AIDS research and therapy · 2024Article
- Dementia Prevention Self-Management in Older Thai Adults with Type 2 Diabetes: Development and Psychometric Properties of Two Questionnaires.Nursing reports (Pavia, Italy) · 2024Article
- Development and psychometric testing of a scale for diet self-management among urban residents in China: a cross-sectional study.BMJ open · 2024Article
- Self-efficacy of PLHIV for self-management at the University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia: a cross-sectional study.BMC primary care · 2024Article
- How Does Anticipated HIV Stigma Affect Medication Adherence? A Longitudinal Path Analysis Model.AIDS and behavior · 2024Article
- Self-Management and Its Associated Factors Among People Living With HIV at University of Gondar Comprehensive Specialized Hospital: A Cross-Sectional Study.BioMed research international · 2024Article
- A Study on AIDS Self-Management Status and Its Influencing Factors.Journal of multidisciplinary healthcare · 2024Article
- Physical activity and survival in chronic comorbidity among adult HIV patients in Ethiopia: a prospective cohort study.BMC infectious diseases · 2023Article
- Exploration of adaptation process and experience among the HIV/AIDS patients based on the comprehensive task-based adaptation model.Zhong nan da xue xue bao. Yi xue ban = Journal of Central South University. Medical sciences · 2023Article
- Self-Management Model fails to Predict Quality of Life for People Living with Dual Diagnosis of HIV and Diabetes.AIDS and behavior · 2022Article
- The relationship between HIV-related stigma and HIV self-management among men who have sex with men: The chain mediating role of social support and self-efficacy.Frontiers in psychology · 2022Article
- The Impact of COVID-19 on HIV Self-Management, Affective Symptoms, and Stress in People Living with HIV in the United States.AIDS and behavior · 2021Article
- Identification of Self-Management Behavior Clusters Among People Living with HIV in China: A Latent Class Profile Analysis.Patient preference and adherence · 2021Article
- Protocol of the randomized control trial: the WiseApp trial for improving health outcomes in PLWH (WiseApp).BMC public health · 2020Article
Corrections and comments
- Erratum issuedBurant, Christopher J [added]
Authors and funding
9 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveTo develop and validate the HIV Self-management Scale for women, a new measure of HIV self-management, defined as the day-to-day decisions that individuals make to manage their illness.
methodsThe development and validation of the scale was undertaken in 3 phases: focus groups, expert review, and psychometric evaluation. Focus groups identified items describing the process and context of self-management in women living with HIV/AIDS (WLHA). Items were refined using expert review and were then administered to WLHA in 2 sites in the United States (n = 260). Validity of the scale was assessed through factor analyses, model fit statistics, reliability testing, and convergent and discriminate validity.
resultsThe final scale consists of 3 domains with 20 items describing the construct of HIV self-management. Daily self-management health practices, social support and HIV self-management, and chronicity of HIV self-management comprise the 3 domains. These domains explained 48.6% of the total variance in the scale. The item mean scores ranged from 1.7 to 2.8, and each domain demonstrated acceptable reliability (0.72-0.86) and stability (0.61-0.85).
conclusionsSelf-management is critical for WLHA, who constitute over 50% of people living with HIV/AIDS (PLWHA) and have poorer health outcomes than their male counterparts. Methods to assess the self-management behavior of WLHA are needed to enhance their health and wellbeing. Presently, no scales exist to measure HIV self-management. Our new 20-item HIV Self-management Scale is a valid and reliable measure of HIV self-management in this population. Differences in aspects of self-management may be related to social roles and community resources, and interventions targeting these factors may decrease morbidity in WLHA.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.