Evidence map›Paper›PMID 22518350›Full record

ArticleHealth and technology2012

Informational Needs of Head and Neck Cancer Patients.

Carolyn Y Fang, Margaret L Longacre, Sharon L Manne, John A Ridge, Miriam N Lango, Barbara A Burtness

Registry-linked trialAbstract read
In one paragraph

Article in Health and technology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02442336 (A Web-based Multimedia Intervention for Head and Neck Cancer Patients), which is not on this map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02442336 nacompletednot on this map

A Web-based Multimedia Intervention for Head and Neck Cancer Patients

TypeinterventionalSponsorFox Chase Cancer CenterRan2012 to 2020Enrolled80ConditionsCancer of the Head and NeckArmsMy Journey AHead
3 · Its place in the literature

Who cites it

21 citing papers in PubMed.

  1. Article
  2. Article
  3. Developing an Integrated Caregiver Patient-Portal System.Healthcare (Basel, Switzerland) · 2021
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Informational Needs of Head and Neck Cancer Patients.Journal of cancer education : the official journal of the American Association for Cancer Education · 2018
    Observational
  9. Information service in head and neck cancer care-a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018
    Article
  10. Survivorship Challenges and Information Needs after Radiotherapy for Oral Cancer.Journal of cancer education : the official journal of the American Association for Cancer Education · 2017
    Article
  11. Article
  12. Course of psychiatric comorbidity and utilization of mental health care after laryngeal cancer: a prospective cohort study.European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery · 2017
    Article
  13. Cancer Patients' Informational Needs: Qualitative Content Analysis.Journal of cancer education : the official journal of the American Association for Cancer Education · 2016
    Article
  14. Article
  15. Medical Communication-related Informational Need and Resource Preferences Among Family Caregivers for Head and Neck Cancer Patients.Journal of cancer education : the official journal of the American Association for Cancer Education · 2015
    Article
  16. Informational needs of gastrointestinal oncology patients.Health expectations : an international journal of public participation in health care and health policy · 2015
    Observational
  17. Coping with an altered mouth and perceived supportive care needs following head and neck cancer treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2015
    Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Carolyn Y FangFox Chase Cancer Center 333 Cottman Avenue Philadelphia, PA 19111 USA.
Margaret L Longacre
Sharon L Manne
John A Ridge
Miriam N Lango
Barbara A Burtness

Funding

WORD PROCESSING CENTER--COREP30CA006927 · NCI · RESEARCH INST OF FOX CHASE CAN CTR · PI Margaret von Mehren · 1985 to 2026
$138.8M
COUPLES DEALING WITH CANCER--ANALYSIS AND INTERVENTIONR01CA078084 · NCI · FOX CHASE CANCER CENTER · PI MANNE, SHARON L · 1998 to 2012
$3.3M
A Web-based Multimedia Intervention for Head and Neck Cancer PatientsR41CA144100 · NCI · TRIAD INTERACTIVE, INC. · PI FANG, CAROLYN Y. · 2011 to 2013
$402k
NCI NIH HHS P30 CA006927NCI NIH HHS R01 CA078084NCI NIH HHS R41 CA144100
6 · The paper itself

Abstract

Treatment for head and neck squamous cell carcinoma (HNSCC) can lead to considerable functional impairment. As a result, HNSCC patients experience significant decrements in quality of life, high levels of emotional distress, deteriorations in interpersonal relations, and increased social isolation. Studies suggest that HNSCC patients may have extensive informational and psychosocial needs that are not being adequately addressed. However, few programs have been developed to address the needs of HNSCC patients. Therefore, we conducted a pilot study of HNSCC patients to: 1) characterize patients' informational needs; and 2) describe preferred formats and time points for receiving such information. The majority of participants desired additional information regarding treatment options, managing changes in swallowing and speaking, and staying healthy after treatment. Overall, patients with early-stage disease reported more informational needs compared to patients with advanced disease. Female patients were more likely to desire information about coping with emotional stress and anxiety than male patients. Younger patients (29-49 years) were more interested in receiving information about sexuality after cancer compared to their older (50+) counterparts. Although information was requested throughout the cancer trajectory, most patients preferred to receive such information at diagnosis or within 1-3 months post-treatment. The majority of patients reported having computer and Internet access, and they were most receptive to receiving information delivered via the Internet, from a DVD, or from pamphlets and booklets. The relatively high percentage of patients with computer and Internet access reflects a growing trend in the United States and supports the feasibility of disseminating health information to this patient population via Internet-based programs.

Identifiers

PMID22518350
PMCPMC3327509

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.