ArticleJournal of clinical oncology : official journal of the American Society of Clinical Oncology2012
Toward patient-centered cancer care: patient perceptions of problematic events, impact, and response.
Article in Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
60 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient, carer and family experiences of seeking redress and reconciliation following a life-changing event: Systematic review of qualitative evidence.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- The impact of physicians' communication styles on evaluation of physicians and information processing: A randomized study with simulated video consultations on contraception with an intrauterine device.Health expectations : an international journal of public participation in health care and health policy · 2017Trial
- The impact of a nurse navigation program on health, economic and medical outcomes of cancer patients in Saxony - a multicenter, prospective, randomized controlled trial.Research in health services & regions · 2026Article
- What do people do in the aftermath of healthcare-related harm? A qualitative study on experiences and factors influencing decision-making.BMJ quality & safety · 2026Article
- From challenge to growth: Exploring physician narratives of patient complaints during residency.Medical education · 2025Review
- Exploring patient centered communication on health outcomes: Role of trust and online information seeking in Turkish cancer patients receiving chemotherapy.BMC health services research · 2025Article
- Power asymmetry and embarrassment in shared decision-making: predicting participation preference and decisional conflict.BMC medical informatics and decision making · 2025Article
- Cross-Cultural Adaptation and Patient Evaluations of a Question Prompt List for Danish-Speaking Patients at the Orthopaedic Surgery Department, Odense University Hospital.International journal of environmental research and public health · 2025Article
- Patient Information Needs During Ambulatory Medication Changes: A Qualitative Study.Journal of patient-centered research and reviews · 2025Article
- Genicular nerve radiofrequency ablation practice patterns: A survey study of the International Pain and Spine Interventional Society.Interventional pain medicine · 2024Article
- Validating the Effectiveness of the Patient-Centered Cancer Care Framework by Assessing the Impact of Work System Factors on Patient-Centered Care and Quality of Care: Interview Study With Newly Diagnosed Cancer Patients.JMIR human factors · 2024Article
- Preferences and Willingness to Pay for Medication in Patients with Renal Cell Carcinoma in China: A Discrete-Choice Experiment.The patient · 2024Article
- Unpacking the Cinderella black box of complex intervention development through the Partners at Care Transitions (PACT) programme of research.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Six Years of Complaints Issued by Patients at a Laser Treatment Center in a Plastic Surgery Hospital.Plastic and reconstructive surgery. Global open · 2023Article
- When attitudes and beliefs get in the way of shared decision-making: A mediation analysis of participation preference.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Partnering with patients and families living with chronic conditions to coproduce diagnostic safety through OurDX: a previsit online engagement tool.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Patient, provider, and nurse preferences of patient reported outcomes (PRO) and side effect management during cancer treatment of underrepresented racial and ethnic minority groups, rural and economically disadvantaged patients: a mixed methods study.Cancer causes & control : CCC · 2022Article
- Factors associated with delayed diagnosis among Filipino pediatric brain tumor patients: a retrospective review.CNS oncology · 2022Article
- Inviting patients to identify diagnostic concerns through structured evaluation of their online visit notes.Journal of the American Medical Informatics Association : JAMIA · 2022Article
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Authors and funding
9 authors.
Funding
Abstract
purposeCancer treatments are complex, involving multiple clinicians, toxic therapies, and uncertain outcomes. Consequently, patients are vulnerable when breakdowns in care occur. This study explored cancer patients' perceptions of preventable, harmful events; the impact of these events; and interactions with clinicians after such events. PATIENTS AND
methodsIn-depth telephone interviews were conducted with cancer patients from three clinical sites. Patients were eligible if they believed: something "went wrong" during their cancer care; the event could have been prevented; and the event caused, or could have caused, significant harm. Interviews focused on patients' perceptions of the event, its impact, and clinicians' responses to the event.
resultsNinety-three of 416 patients queried believed something had gone wrong in their care that was preventable and caused or could have caused harm. Seventy-eight patients completed interviews. Of those interviewed, 28% described a problem with medical care, such as a delay in diagnosis or treatment; 47% described a communication problem, including problems with information exchange or manner; and 24% described problems with both medical care and communication. Perceived harms included physical and emotional harm, disruption of life, effect on family members, damaged physician-patient relationship, and financial expense. Few clinicians initiated discussion of the problematic events. Most patients did not formally report their concerns.
conclusionCancer patients who believe they experienced a preventable, harmful event during their cancer diagnosis or care often do not formally report their concerns. Systems are needed to encourage patients to report such events and to help physicians and health care systems respond effectively.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.