ArticleInternational journal of geriatric psychiatry2012
Strain and its correlates among carers of people with dementia in low-income and middle-income countries. A 10/66 Dementia Research Group population-based survey.
Article in International journal of geriatric psychiatry, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 41 papers, 5 of them syntheses that pooled it.
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Who cites it
41 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Factors linked to informal caregiver burden in dementia across Latin America and the Caribbean: A systematic review and meta-analysis.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Pooled it
- Acceptance and Commitment Therapy Among Informal Caregivers of People With Chronic Health Conditions: A Systematic Review and Meta-Analysis.JAMA network open · 2023Pooled it
- In Caring for Older People in Low- and Middle-Income Countries, Do Older Caregivers Have a High Level of Care Burden and Psychological Morbidity Compared to Younger Caregivers?International journal of environmental research and public health · 2022Pooled it
- Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review.PloS one · 2020Pooled it
- Measuring the impact of informal elderly caregiving: a systematic review of tools.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016Pooled it
- Exploring the effectiveness of an internet-based program for reducing caregiver distress using the iCare Stress Management e-Training Program.Aging & mental health · 2013Trial
- A Global, Regional, and National Survey on Burden and Quality of Care Index of Alzheimer's Disease and Other Dementias in Adults Aged 55 and Above: The Global Burden of Disease Study 1990-2021.Neuroepidemiology · 2026Article
- Navigating dementia care: a qualitative study of family care partners' experiences in managing behavioural and psychological symptoms in Lima, Peru.Frontiers in dementia · 2026Article
- Digital interventions for common mental health problems among older adults in low- and middle-income countries: a scoping review.BMJ global health · 2025Article
- Caregiver burden of Alzheimer's disease among informal caregivers: a cross-sectional study in Malaysia.Scientific reports · 2025Article
- Assessment of Health System Readiness and Quality of Dementia Services in Peru: Protocol for a Qualitative Study With Stakeholder Interviews and Documentation Review.JMIR research protocols · 2025Article
- The Brain Health Diplomat's Toolkit: supporting brain health diplomacy leaders in Latin America and the Caribbean.Lancet regional health. Americas · 2023Review
- A qualitative 5-country comparison of the perceived impacts of COVID-19 on people living with dementia and unpaid carers.BMC geriatrics · 2022Article
- Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study.Dementia (London, England) · 2022Article
- Dementia caregiving across Latin America and the Caribbean and brain health diplomacy.The lancet. Healthy longevity · 2021Review
- Being the Family Caregiver of a Patient With Dementia During the Coronavirus Disease 2019 Lockdown.Frontiers in aging neuroscience · 2021Article
- The Latin America and the Caribbean Consortium on Dementia (LAC-CD): From Networking to Research to Implementation Science.Journal of Alzheimer's disease : JAD · 2021Article
- Experiences and Needs of Caregivers of Persons With Dementia in India During the COVID-19 Pandemic-A Qualitative Study.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2020Article
- Perceptions, Experiences, and Challenges of Physicians Involved in Dementia Care During the COVID-19 Lockdown in India: A Qualitative Study.Frontiers in psychiatry · 2020Article
- The impact of SARS-CoV-2 in dementia across Latin America: A call for an urgent regional plan and coordinated response.Alzheimer's & dementia (New York, N. Y.) · 2020Article
Corrections and comments
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Authors and funding
14 authors.
Funding
Abstract
objectivesIn a multi-site population-based study in several middle-income countries, we aimed to investigate relative contributions of care arrangements and characteristics of carers and care recipients to strain among carers of people with dementia. Based on previous research, hypotheses focused on carer sex, care inputs, behavioural and psychological symptoms (BPSD) and socioeconomic status, together with potential buffering effects of informal support and employing paid carers.
methodsIn population-based catchment area surveys in 11 sites in Latin America, India and China, we analysed data collected from people with dementia and care needs, and their carers. Carer strain was assessed with the Zarit Burden Interview.
resultsWith 673 care recipient/carer dyads interviewed (99% of those eligible), mean Zarit Burden Interview scores ranged between 17.1 and 27.9 by site. Women carers reported more strain than men. The most substantial correlates of carer strain were primary stressors BPSD, dementia severity, needs for care and time spent caring. Socioeconomic status was not associated with carer strain. Those cutting back on work experienced higher strain. There was tentative evidence for a protective effect of having additional informal or paid support.
conclusionsOur findings underline the global impact of caring for a person with dementia and support the need for scaling up carer support, education and training. That giving up work to care was prevalent and associated with substantial increased strain emphasizes the economic impact of caring on the household. Carer benefits, disability benefits for people with dementia and respite care should all be considered.
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