ArticleCMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne2012
Social, psychological and existential well-being in patients with glioma and their caregivers: a qualitative study.
Article in CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 66 papers, 3 of them syntheses that pooled it.
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Who cites it
66 citing papers in PubMed, 3 syntheses or guidelines pooled it, 134 citations in OpenAlex.
- What are the experiences of supportive care in people affected by brain cancer and their informal caregivers: A qualitative systematic review.Journal of cancer survivorship : research and practice · 2024Pooled it
- Interventions to help support caregivers of people with a brain or spinal cord tumour.The Cochrane database of systematic reviews · 2019Pooled it
- Prognostic awareness and communication of prognostic information in malignant glioma: a systematic review.Journal of neuro-oncology · 2014Pooled it
- "It's My Wish, We Need This Program": Qualitative Reflections From People With High-Grade Brain Cancer Consenting to Postmortem Brain Donation.JCO oncology practice · 2026Article
- Patient perspectives on diagnostic uncertainty and novel diagnostic tests in neuro-oncology.Neuro-oncology practice · 2026Article
- European Association for Palliative Care White Paper on spiritual care for people with neuro-oncological and neurodegenerative conditions: Integrative framework for practice, education, and research.Palliative & supportive care · 2026Review
- Nationwide evaluation of readability, quality, and cultural sensitivity of online brain cancer education materials in the United States.Neuro-oncology practice · 2025Article
- Exploring spirituality in everyday neuro-oncology practice - nurses' and physicians' spiritual care toolbox.Neuro-oncology practice · 2025Article
- A pilot study to quantify and describe personal social networks in patients with glioblastoma.Neuro-oncology practice · 2025Article
- Well-being and coping: Key aspects of unmet need of people living with glioma.Neuro-oncology practice · 2025Article
- Spirituality in Professional Patient-Centered Care for Adults with Primary Brain Tumors: An Exploratory Scoping Review.Journal of religion and health · 2025Article
- Cognitive Decline in Glioblastoma (GB) Patients with Different Treatment Modalities and Insights on Untreated Cases.Current oncology (Toronto, Ont.) · 2025Review
- Towards a definition of an existential approach in cancer patients: a co-produced scoping review.PloS one · 2025Article
- The Power of a Belief System: A Systematic Qualitative Synthesis of Spiritual Care for Patients with Brain Tumors.Journal of clinical medicine · 2024Review
- "Not me!" a qualitative, vignette-based study of nurses' and physicians' reactions to spiritual distress on neuro-oncological units.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Critical Issues for Patients and Caregivers in Neuro-Oncology during the COVID-19 Pandemic: What We Have Learnt from an Observational Study.Current oncology (Toronto, Ont.) · 2024Observational
- "It changes everything": Understanding how people experience the impact of living with a lower-grade glioma.Neuro-oncology practice · 2024Article
- Article
- Social network trajectory of young adults aged 18-35 years diagnosed with a brain tumour: a protocol for a mixed methods study.BMJ open · 2023Article
- Measuring and understanding death anxiety in caregivers of patients with primary brain tumor.Palliative & supportive care · 2023Article
6 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCerebral glioma has a devastating impact on cognitive, physical, social, psychological and spiritual well-being. We sought to understand the multidimensional experience of patients with this form of cancer as they progressed from receiving a diagnosis to the terminal phase of the disease.
methodsWe recruited patients with a suspected brain tumour from a tertiary referral centre in the United Kingdom. We interviewed patients and their caregivers at key stages of the illness: before receiving a formal diagnosis, at the start of initial treatment, after initial treatment was completed and at six months' follow-up; caregivers were also interviewed postbereavement. We interviewed the patients' general practitioners once, after treatment had been completed. We transcribed the interviews and analyzed them thematically using the constant comparative method of a grounded theory approach.
resultsWe conducted in-depth interviews with 26 patients, 23 of their relatives and 19 general practitioners. We saw evidence of physical, social, psychological and existential distress even before a diagnosis was confirmed. Social decline followed a similar trajectory to that of physical decline, whereas psychological and existential distress were typically acute around diagnosis and again after initial treatment. Each patient's individual course varied according to other factors including the availability of support and individual and family resources (e.g., personal resilience and emotional support).
interpretationThere are practical ways that clinicians can care for patients with glioma and their caregivers, starting from before a diagnosis is confirmed. Understanding the trajectories of physical, social, psychological and existential well-being for these patients allows health care professionals to predict their patients' likely needs so they can provide appropriate support and sensitive and effective communication.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.