ArticleJournal of community genetics2012
Who is being referred to cancer genetic counseling? Characteristics of counselees and their referral.
Article in Journal of community genetics, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Awareness, knowledge, perceptions, and attitudes towards genetic testing for cancer risk among ethnic minority groups: a systematic review.BMC public health · 2017Pooled it
- A systematic review of factors that act as barriers to patient referral to genetic services.European journal of human genetics : EJHG · 2015Pooled it
- Article
- Article
- Eleven Years of Oncogenetic Consultations in a Swiss Center: Patient and Testing Characteristics.The application of clinical genetics · 2023Article
- A qualitative reflexive thematic analysis into the experiences of being identified with a BRCA1/2 gene alteration: "So many little, little traumas could have been avoided".BMC health services research · 2022Article
- Automated Clinical Practice Guideline Recommendations for Hereditary Cancer Risk Using Chatbots and Ontologies: System Description.JMIR cancer · 2022Article
- Development of a plain-language guide for discussing breast cancer genetic counseling and testing with patients with limited health literacy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Communication about breast cancer genetic counseling with patients with limited health literacy or a migrant background: evaluation of a training program for healthcare professionals.Journal of community genetics · 2021Article
- Systematic development of a training program for healthcare professionals to improve communication about breast cancer genetic counseling with low health literate patients.Familial cancer · 2020Article
- Variations in the Referral Pattern for Genetic Counseling of Patients with Early-Onset Breast Cancer: A Population-Based Study in Southern Sweden.Public health genomics · 2020Article
- Identifying patients with a history of ovarian cancer for referral for genetic counselling: non-randomised comparison of two case-finding strategies in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2018Article
- Referral to cancer genetic counseling: do migrant status and patients' educational background matter?Journal of community genetics · 2017Article
- Breast cancer genetic counseling among Dutch patients from Turkish and Moroccan descent: participation determinants and perspectives of patients and healthcare professionals.Journal of community genetics · 2017Article
- Germline Analysis from Tumor-Germline Sequencing Dyads to Identify Clinically Actionable Secondary Findings.Clinical cancer research : an official journal of the American Association for Cancer Research · 2016Article
- Communication Between Breast Cancer Patients Who Received Inconclusive Genetic Test Results and Their Daughters and Sisters Years After Testing.Journal of genetic counseling · 2016Article
- Migrant breast cancer patients and their participation in genetic counseling: results from a registry-based study.Familial cancer · 2016Article
- Gatekeeper role of gastroenterologists and surgeons in recognising and discussing familial colorectal cancer.Familial cancer · 2016Article
- What hinders minority ethnic access to cancer genetics services and what may help?European journal of human genetics : EJHG · 2014Article
- Breast cancer genetic counselling referrals: how comparable are the findings between the UK and the Netherlands?Journal of community genetics · 2011Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Both physician and patient play a role in the referral process for cancer genetic counseling. Access to such counseling is not optimal because some eligible patients are not being reached by current referral practice. We aimed to identify factors associated with the initiator of referral. During a 7-month period, we recorded demographic characteristics like gender, personal and family history of cancer, ethnicity and eligibility for genetic testing for 406 consecutive counselees using a specially designed questionnaire. Counselees were seen in a university hospital or a community hospital (n = 7) in the Netherlands. We also recorded educational level of each counselee, clinical setting and who initiated referral. Descriptive statistics were used to describe the counselees' general characteristics. We analysed the association between counselee characteristics and the initiator of referral by logistic regression. The majority of counselees seemed to have initiated referral themselves but were indeed eligible for genetic testing. In comparison to the general population in the Netherlands, the counselees had a higher level of education, and there were fewer immigrants, although a higher level of education was not found to be a facilitating factor for referral. The clinical setting where a counselee was seen was associated with initiator of referral, although this relationship was not straightforward. There is a complex interaction between clinical setting and initiator of referral, which warrants further research to elucidate the factors involved in this relationship. Patients seen in cancer genetic counseling do not reflect the general population in terms of educational level or ethnicity.
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