Trial reportFamilial cancer2012
The use of telephone in genetic counseling versus in-person counseling: a randomized study on counselees' outcome.
Trial report in Familial cancer, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 43 citations in OpenAlex.
- A Systematic Review of Randomized Controlled Trials to Assess Outcomes of Genetic Counseling.Journal of genetic counseling · 2017Pooled it
- High patient satisfaction with a simplified BRCA1/2 testing procedure: long-term results of a prospective study.Breast cancer research and treatment · 2019Trial
- Patient and genetic counselor perceptions of in-person versus telephone genetic counseling for hereditary breast/ovarian cancer.Familial cancer · 2016Trial
- Economic Evaluation Alongside a Clinical Trial of Telephone Versus In-Person Genetic Counseling for BRCA1/2 Mutations in Geographically Underserved Areas.Journal of oncology practice · 2016Trial
- Randomized noninferiority trial of telephone versus in-person genetic counseling for hereditary breast and ovarian cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2014Trial
- Consumer-oriented (patient and family) outcomes from nursing in genomics: a scoping review of the literature (2012-2022).Frontiers in genetics · 2024Article
- Article
- The growing needs of genetic counselling-Feasibility in utilization of tele-genetic counselling in Asia and Hong Kong.Frontiers in genetics · 2023Review
- Transformation to telephonic genetic counselling during SARS-CoV-2 pandemic: challenges and suggested protocol in Indian scenario.Journal of genetics · 2022Article
- Genetic counseling in the time of COVID-19: The Philippine experience with telegenetics.Journal of genetic counseling · 2021Article
- Sudden shift to remote genetic counseling during the COVID-19 pandemic: Experiences of genetics professionals in Italy.Journal of genetic counseling · 2021Article
- How and when to refer patients for oncogenetic counseling in the era of PARP inhibitors.Therapeutic advances in medical oncology · 2020Review
- Rural-urban and racial-ethnic differences in awareness of direct-to-consumer genetic testing.BMC public health · 2018Article
- Identification of hereditary cancer in the general population: development and validation of a screening questionnaire for obtaining the family history of cancer.Cancer medicine · 2017Article
- Genetic Counseling Assistants: an Integral Piece of the Evolving Genetic Counseling Service Delivery Model.Journal of genetic counseling · 2017Article
- Analysis of Advantages, Limitations, and Barriers of Genetic Counseling Service Delivery Models.Journal of genetic counseling · 2016Article
- Telemedicine uptake among Genetics Professionals in Europe: room for expansion.European journal of human genetics : EJHG · 2016Article
- A Comparison of Telephone Genetic Counseling and In-Person Genetic Counseling from the Genetic Counselor's Perspective.Journal of genetic counseling · 2016Article
- Alternate Service Delivery Models in Cancer Genetic Counseling: A Mini-Review.Frontiers in oncology · 2016Review
- Genetic counselors' practices and confidence regarding variant of uncertain significance results and reclassification from BRCA testing.Clinical genetics · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Increased demand for genetic counseling services necessitates exploring alternatives to in-person counseling. Telephone counseling is a less time-consuming and more cost-effective alternative. So far there is insufficient evidence to support a pre-counseling telephone model. This randomized questionnaire study aims to evaluate the oncogenetic counseling process and to compare the impact of the initial part of the oncogenetic counseling, when conducted via telephone versus in-person. The aspects of evaluations were: patients' expectations, satisfaction and experiences of genetic counseling, worry for developing hereditary cancer and health related quality of life. A total of 215 participants representing several cancer syndromes were randomized to counseling via telephone or in-person. The questionnaires were completed before and after oncogenetic nurse counseling, and 1 year after the entire counseling process. Overall, a high satisfaction rate with the oncogenetic counseling process was found among the participants regardless of whether the oncogenetic nurse counseling was conducted by telephone or in-person. The results show that a considerable number of participants experienced difficulties with the process of creating a pedigree and dissatisfaction with information on surveillance and prevention. Affected participants reported lower levels in most SF-36 domains compared to non-affected and both groups reported lower levels as compared to a Swedish reference group. The results indicate that telephone pre-counseling works as well as in-person counseling. Emotional support during genetic counseling and information on recommended cancer prevention and surveillance should be improved.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.