Evidence map›Paper›PMID 22389171›Full record

SynthesisJournal of cancer survivorship : research and practice2012

A systematic review of large-scale surveys of cancer survivors conducted in North America, 2000-2011.

Catherine C Lerro, Kevin D Stein, Tenbroeck Smith, Katherine S Virgo

Abstract readSystematic Review
PubMed Publisher
In one paragraph

Synthesis in Journal of cancer survivorship : research and practice, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Perspectives of survivors: Relationship changes following cancer diagnosis and treatment.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2023
    Article
  6. Article
  7. Article
  8. Large-scale North American cancer survivorship surveys: 2011-2019 update.Journal of cancer survivorship : research and practice · 2022
    Review
  9. Review
  10. Cross-sectional study of sex differences in psychosocial quality of life of long-term melanoma survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Article
  11. Perspectives of survivors: Coping with lifestyle adjustments following cancer diagnosis and treatment.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2021
    Article
  12. Living with peripheral neuropathy following completion of cancer treatment.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2021
    Article
  13. Living with body image changes following completion of cancer treatment.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2020
    Article
  14. Living with cognitive changes following completion of cancer treatment.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2020
    Article
  15. Experiences of adult cancer survivors in transitions.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019
    Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Catherine C LerroHealth Services Research Program, Intramural Research Department, American Cancer Society National Home Office, Atlanta, GA, USA. catherine.lerro@cancer.org
Kevin D Stein
Tenbroeck Smith
Katherine S Virgo

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionMany large surveys collect data on cancer survivors, but few encompass the full spectrum of domains relevant to survivorship ranging from cancer care to quality of life to late- and long-term effects of cancer and its treatment. Here, we review large data sources in North America collecting cancer survivor-reported health information, and catalogue the domains of cancer survivorship each includes.

methodsWe identified surveys of cancer survivors through a comprehensive web search of federal government agencies, non-profit organizations, and related societies that support health care research or provide health care services, as well as a systematic review of literature indexed on PubMed from 2000-2011.

resultsA total of 57 surveys were identified, 26 nationally representative surveys and 31 regional, state, or provincial surveys. Thirty-four surveys specifically targeted cancer survivors, and an additional two surveys had supplements or modules targeted at cancer survivors. Among the nationally representative surveys, general medical characteristics and medical conditions were the most frequently reported cancer survivorship domains, and information on cancer-related costs was least frequently reported. DISCUSSION/

conclusionOur review demonstrates that a large and growing number of surveys across the U.S. and Canada are collecting data on cancer survivors. These surveys differ in design, geographic region, primary population of interest, cancer site, and research areas of interest. They address a wide range of survivorship issues. Future cancer survivorship research should concentrate on understudied areas in order to better understand the challenges faced by this growing population.

Indexed as

Databases, FactualSurvivorsHealth Care SurveysHumansNeoplasmsNorth America

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.