ArticleGenetics in medicine : official journal of the American College of Medical Genetics2012
Tilting at windmills no longer: a data-driven discussion of DTC DNA ancestry tests.
Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- Do genetic ancestry tests increase racial essentialism? Findings from a randomized controlled trial.PloS one · 2020Trial
- Ethical Priorities Among Commercial Genomics Professionals : Survey Evidence Highlighting Diversity, Fragmented Privacy Law, and Human Rights Risks as Central Participant Concerns.Journal of bioethical inquiry · 2026Article
- Parents' Perspectives on Secondary Genetic Ancestry Findings in Pediatric Genomic Medicine.Clinical therapeutics · 2023Article
- Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing.Public health genomics · 2022Article
- Impacts of personal DNA ancestry testing.Journal of community genetics · 2021Article
- Secondary Data Usage in Direct-to-Consumer Genetic Testing: To What Extent Are Customers Aware and Concerned?Public health genomics · 2021Article
- Genetic testing and employer-sponsored wellness programs: An overview of current vendors, products, and practices.Molecular genetics & genomic medicine · 2020Article
- Public reactions to direct-to-consumer genetic health tests: A comparison across the US, UK, Japan and Australia.European journal of human genetics : EJHG · 2020Article
- Constructing identities: the implications of DTC ancestry testing for tribal communities.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- Direct-to-Consumer Genetic Testing's Red Herring: "Genetic Ancestry" and Personalized Medicine.Frontiers in medicine · 2019Article
- Consumer (dis-)interest in Genetic Ancestry Testing: The roles of race, immigration, and ancestral certainty.New genetics and society · 2019Article
- "Bridge to the Literature"? Third-Party Genetic Interpretation Tools and the Views of Tool Developers.Journal of genetic counseling · 2018Article
- Barriers and Strategies Related to Qualitative Research on Genetic Ancestry Testing in Indigenous Communities.Journal of empirical research on human research ethics : JERHRE · 2017Article
- The Y chromosome as the most popular marker in genetic genealogy benefits interdisciplinary research.Human genetics · 2017Review
- Health and genetic ancestry testing: time to bridge the gap.BMC medical genomics · 2017Article
- Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project.European journal of human genetics : EJHG · 2016Article
- Estimates of continental ancestry vary widely among individuals with the same mtDNA haplogroup.American journal of human genetics · 2015Article
- Direct-to-Consumer Genetic Testing and Personal Genomics Services: A Review of Recent Empirical Studies.Current genetic medicine reports · 2013Article
- Field of genes: an investigation of sports-related genetic testing.Journal of personalized medicine · 2012Article
- Attitudes on DNA ancestry tests.Human genetics · 2012Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
purposeDiscussions about direct-to-consumer (DTC) DNA ancestry tests have to date been based primarily on conjectures, speculation, and anecdotes, despite the industry being more than a decade old. Representative, empirical data on consumer characteristics; motivations and expectations for testing; intended uses for the information; understanding of results; and behavioral and psychological reactions to the tests are absent. Although the 2010 American Society of Human Genetics white paper clarifies the number and some general characteristics of companies marketing and selling DNA ancestry tests, additional data about the industry's practices have been unavailable.
methodsTo promote a data-driven discussion of the DNA ancestry testing industry, we conducted a systematic investigation to identify companies selling DNA ancestry tests and conducted an empirical study of the industry's practices using data collected from each company's website.
resultsHere, we present a wealth of data, including an updated directory of companies, marketing slogans, product types and names, range of prices, diversity of reporting and representing results, noted benefits and limitations of testing, and a host of website practices.
conclusionThe tremendous diversity of tests, information, and practices of companies in the DNA ancestry sector should be considered when policies for best practice guidelines or regulatory oversight are being developed.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.