ArticleJournal of empirical research on human research ethics : JERHRE2012
Tailoring information provision and consent processes to research contexts: the value of rapid assessments.
Article in Journal of empirical research on human research ethics : JERHRE, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
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Who cites it
32 citing papers in PubMed.
- Cluster randomized trial assessing the effects of rapid ethical assessment on informed consent comprehension in a low-resource setting.BMC medical ethics · 2016Trial
- Ethical Imperatives for Working With Diverse Populations in Digital Research.Journal of medical Internet research · 2023Article
- Beyond translations, perspectives for researchers to consider to enhance comprehension during consent processes for health research in sub-saharan Africa: a scoping review.BMC medical ethics · 2023Article
- Rapid Bioethical Assessment forEthiopian journal of health sciences · 2023Article
- Fragmented understanding: exploring the practice and meaning of informed consent in clinical trials in Ho Chi Minh City, Vietnam.BMC medical ethics · 2023Article
- Culturally responsive research ethics: How the socio-ethical norms of Arr-nar/Kreng-jai inform research participation at the Thai-Myanmar border.PLOS global public health · 2023Article
- Article
- Guardians and research staff experiences and views about the consent process in hospital-based paediatric research studies in urban Malawi: A qualitative study.BMC medical ethics · 2022Article
- Including diverse and admixed populations in genetic epidemiology research.Genetic epidemiology · 2022Article
- Rapid ethical appraisal of stakeholder views on research prior to undertaking immunopathogenesis studies on podoconiosis in northeast Ethiopia during a period of social instability.Transactions of the Royal Society of Tropical Medicine and Hygiene · 2021Article
- Vulnerability, Agency, and the Research Encounter: Family Members' Experiences and Perceptions of Participating in an Observational Clinical Study in Kenya.Journal of empirical research on human research ethics : JERHRE · 2021Article
- Editorial - ethical practice and genomic research.Global bioethics = Problemi di bioetica · 2020Article
- A qualitative study on aspects of consent for genomic research in communities with low literacy.BMC medical ethics · 2020Article
- Bioethical reflexivity and requirements of valid consent: conceptual tools.BMC medical ethics · 2019Article
- Precarity, clinical labour and graduation from Ebola clinical research in West Africa.Global bioethics = Problemi di bioetica · 2019Article
- Application of the rapid ethical assessment approach to enhance the ethical conduct of longitudinal population based female cancer research in an urban setting in Ethiopia.BMC medical ethics · 2018Article
- Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.BMC medical ethics · 2018Article
- Reasons for participating in a randomised clinical trial: The volunteers' voices in the COSTOP trial in Uganda.Contemporary clinical trials communications · 2017Article
- Rapid Ethical Appraisal: A tool to design a contextualized consent process for a genetic study of podoconiosis in Ethiopia.Wellcome open research · 2017Article
- Understanding of research, genetics and genetic research in a rapid ethical assessment in north west Cameroon.International health · 2016Article
Corrections and comments
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Authors and funding
3 authors.
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Abstract
Guidance requires that consent processes for research be appropriately tailored to their cultural context. This paper discusses the use of rapid assessments to identify cultural and ethical issues arising when explaining research in studies in The Gambia and Ethiopia. The assessments provided insights into appropriate ways of providing information to minimize the risk of stigmatizing vulnerable research populations; research participants' views about the most important information to provide about research and their understandings of research; and perceived constraints upon reaching voluntary decisions about participation. These insights demonstrate that rapid assessments are a relatively quick and inexpensive intervention that can provide valuable information to assist in the tailoring of information provision and consent processes to research context while maintaining and enhancing participants' fundamental protections.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.