ArticleMCN. The American journal of maternal child nursing
Transition to home after neonatal surgery for congenital heart disease.
Article in MCN. The American journal of maternal child nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05852106 (The Effect of 3D Modeling on Family Quality of Life, Surgical Success and Patient Outcomes in Congenital Heart Diseases), which is not on this map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Effect of 3D Modeling on Family Quality of Life, Surgical Success and Patient Outcomes in Congenital Heart Diseases: A Randomized Controlled Trial Protocol
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 77 citations in OpenAlex.
- Health-related quality of life and influencing factors in parents of children with congenital heart disease: a systematic review and meta-analysis.Frontiers in public health · 2025Pooled it
- The development of a consensus-based nutritional pathway for infants with CHD before surgery using a modified Delphi process.Cardiology in the young · 2018Guideline
- Guided Participation Support of Coparenting an Infant With Complex Congenital Heart Disease: A Randomized Pilot Feasibility Study.Research and theory for nursing practice · 2022Trial
- Quality of Life of Mothers of Infants Subjected to Neonatal Cardiac Surgery: The Importance of Psychosocial Factors.World journal for pediatric & congenital heart surgery · 2022Trial
- Trial
- Early growth trajectory is associated with psychological stress in parents of infants with congenital heart disease, but moderated by quality of partner relationship.Journal of pediatric nursingTrial
- Parent understanding and satisfaction with NICU discharge for infants with medical complexity: a scoping review of discharge instruction tools.BMC pediatrics · 2026Article
- Parent Understanding and Satisfaction with NICU Discharge for Infants with Medical Complexity: A Scoping Review of Discharge Instruction Tools.Research square · 2026Article
- Developmental care pathway for hospitalised infants with CHD: on behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative.Cardiology in the young · 2023Article
- Trajectories of Maternal and Paternal Psychological Distress After Fetal Diagnosis of Moderate-Severe Congenital Heart Disease.Journal of pediatric psychology · 2023Article
- Relationship Between Human Milk Feeding Patterns and Growth in the First Year of Life in Infants with Congenital Heart Defects.Pediatric cardiology · 2023Article
- A scoping review of the post-discharge care needs of babies requiring surgery in the first year of life.PLOS global public health · 2023Article
- Nutritional Management of Patients with Fontan Circulation: A Potential for Improved Outcomes from Birth to Adulthood.Nutrients · 2022Review
- Quality of Life of Families with Children Presenting Congenital Heart Disease:Longitudinal Study Protocol.Healthcare (Basel, Switzerland) · 2022Article
- The role of parenting stress in anxiety and sleep outcomes in toddlers with congenital heart disease.Frontiers in pediatrics · 2022Article
- Morbidities After Cardiac Surgery: Impact on Children's Quality of Life and Parents' Mental Health.The Annals of thoracic surgery · 2021Article
- Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.Cardiology in the young · 2021Article
- Feeding infants with complex congenital heart disease: a modified Delphi survey to examine potential research and practice gaps.Cardiology in the young · 2021Article
- Needs for Post-hospital Education among Parents of Infants and Toddlers with Congenital Heart Disease.Child health nursing research · 2020Article
- The lived experience of parents whose children discharged to home after cardiac surgery for congenital heart disease.Acta bio-medica : Atenei Parmensis · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
purposeTo ascertain the primary caregiver's postdischarge perceptions of infant care issues after neonatal heart surgery. STUDY DESIGN AND
methodsFifteen primary caregivers of infants who had neonatal heart surgery for complex congenital heart disease (CHD) participated in this study. We conducted two focus groups and four individual phone interviews using a structured interview guide. The topics included parent feeding management, infant caloric intake, parental acceptance of nasogastric tube, infant feeding behaviors, and issues of parenting stress. We audio recorded focus group sessions, made detailed notes and key quotes were recorded verbatim by a certified impartial focus group facilitator.
resultsFeeding problems were present in both infants who were on full oral feeds and infants who were dependent on supplemental feeding tubes. Mothers of infants with feeding problems expressed concern over infant weight gain and caregiver sleep deprivation, which largely contributed to parental stress. CLINICAL IMPLICATIONS: In this small study of infants who experienced neonatal surgery for complex CHD, parental stress over feeding and weight gain were identified as important areas to be addressed during hospitalization. Future studies are needed to address increased at-home parental support.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.