ArticleThe journal of spinal cord medicine2011
Obstacles to community participation among youth with spinal cord injury.
Article in The journal of spinal cord medicine, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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Who cites it
9 citing papers in PubMed, 19 citations in OpenAlex.
- The voice of caregivers of children and adolescents with spinal cord injuries: A scoping review.The journal of spinal cord medicine · 2024Article
- Lived experiences of caregivers and survivors of paediatric spinal cord injury: A scoping review of qualitative studies.The journal of spinal cord medicine · 2024Article
- Factors Influencing Participation in Physical Activity, Sports, and Exercise in Children and Adolescents with Spinal Pain or Spinal Conditions: A Systematic Review and Meta-Ethnography.Behavioral sciences (Basel, Switzerland) · 2023Review
- Coping, Social Support, and Caregiver Well-Being With Families Living With SCI: A Mixed Methods Study.Topics in spinal cord injury rehabilitation · 2022Article
- Coaching-in-Context With Informal Maternal Care Partners of Children With Spinal Cord Injury.Topics in spinal cord injury rehabilitation · 2022Article
- Development of the Parent Forum: An in-person approach to supporting caregivers of youth with spinal cord injury.The journal of spinal cord medicine · 2019Article
- Rewards of parenting children and adolescents with spinal cord injuries.Spinal cord · 2017Article
- The relationship between physical fitness and community participation in people with spinal cord injury.The South African journal of physiotherapy · 2017Article
- Spinal cord injury in pediatric age in Spain. Reality of a national reference center.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2015Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveExamine caregiver-report of obstacles to community participation for youth with spinal cord injury (SCI), and explore relationships between obstacles and child, caregiver, and community characteristics.
designTwo hundred and one primary caregivers of youth with SCI ages 7-17 years were interviewed at three pediatric SCI centers within a single-hospital system. Caregivers answered an open-ended question assessing obstacles to youth participation. A mixed-methods approach was incorporated, where qualitative methods analyzed caregiver-reported obstacles, and exploratory multivariate analyses examined relationships between obstacles and demographic variables.
resultsCaregivers were primarily mothers (74%), married (69%), employed (54%), had college experience (67%), and lived in small towns (55%). Youths' mean age was 12.60 years at interview and 7.19 years at injury, 70% had paraplegia, and 55% had complete injuries. Analyses revealed that youth participation was limited by obstacles across six domains: community, disability-related, practical concerns, child-internal, social, and other. Child, caregiver, and community characteristics were related to overall report of obstacles, and report of community obstacles, disability-related obstacles, and practical concerns. Caregiver college experience and small town living predicted overall report of obstacles. Having a child injured at a younger age, caregiver college experience, and small town living predicted community obstacles. Having a child with an incomplete injury and recent medical complication predicted disability-related obstacles. Caregiver employment predicted practical concerns.
conclusionYouth from small towns, those injured younger, those with incomplete injuries, and those experiencing recent medical complications may need additional supports and resources to maximize participation. Clinicians should work with caregivers to identify and problem-solve obstacles to youth participation.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.