ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2012
Care and support needs of patients and carers early post-discharge following treatment for non-malignant brain tumour: establishing a new reality.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 33 citations in OpenAlex.
- Impact of the Method of Delivering Electronic Health Behavior Change Interventions in Survivors of Cancer on Engagement, Health Behaviors, and Health Outcomes: Systematic Review and Meta-Analysis.Journal of medical Internet research · 2020Pooled it
- Outcomes of an electronic social network intervention with neuro-oncology patient family caregivers.Journal of neuro-oncology · 2018Trial
- Effects of enhanced caregiver training program on cancer caregiver's self-efficacy, preparedness, and psychological well-being.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2016Trial
- Identifying and understanding how people living with a lower-grade glioma engage in self-management.Journal of cancer survivorship : research and practice · 2024Article
- The experience of caregiving for adults with benign brain tumors: An integrative review.Neuro-oncology practice · 2024Review
- 'A Constant Black Cloud': The Emotional Impact of Informal Caregiving for Someone With a Lower-Grade Glioma.Qualitative health research · 2024Article
- Review
- Determining the unmet needs of patients with intracranial meningioma-a qualitative assessment.Neuro-oncology practice · 2020Article
- The experiences of older caregivers of cancer patients following hospital discharge.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Mediating burden and stress over time: Caregivers of patients with primary brain tumor.Psycho-oncology · 2018Article
- Existential distress among caregivers of patients with brain tumors: a review of the literature.Neuro-oncology practice · 2016Review
- Primary brain tumor patients' supportive care needs and multidisciplinary rehabilitation, community and psychosocial support services: awareness, referral and utilization.Journal of neuro-oncology · 2016Article
- Neuro-oncology family caregiving: review and directions for future research.CNS oncology · 2016Review
- Study of factors determining caregiver burden among primary caregivers of patients with intracranial tumors.Surgical neurology international · 2015Article
- Support after brain tumor means different things: family caregivers' experiences of support and relationship changes.Frontiers in oncology · 2015Article
- Relative survival of patients with non-malignant central nervous system tumours: a descriptive study by the Austrian Brain Tumour Registry.British journal of cancer · 2014Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveNon-malignant brain tumours have the potential to considerably affect functional outcomes and quality of life, with an associated significant burden for carers. There is a lack of knowledge about the care and support needs of patients with a brain tumour and their carers, in the early period following discharge from initial hospitalisation. The purpose of this study was to understand the early post-discharge support services and care requirements of individuals with brain tumour and their family caregivers between short-term (2 weeks) post-discharge and medium-term (3 months) following hospital discharge.
methodsA qualitative approach was utilised with semi-structured interviews of nine patients with brain tumour and five of their family caregivers. Thematic content analysis was used to generate in-depth descriptions of the participant's life experiences post-discharge following neurosurgical intervention.
resultsThe overarching theme emerging from the data analysis related to patients and carers 'establishing a new reality' underpinned by three primary categories: (1) coping with available supports, (2) adjusting to routines and relationships and (3) emotional responses.
conclusionParticipants had a tendency to rely on informal support networks but identified unmet information and support needs particularly for carers. These findings highlight the need for more efficient and effective discharge preparation, referral to services and supports, provision of timely information and support for family caregivers of those with brain tumour.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.