ArticleHealth and quality of life outcomes2012
Preliminary development and psychometric evaluation of an unmet needs measure for adolescents and young adults with cancer: the Cancer Needs Questionnaire - Young People (CNQ-YP).
Article in Health and quality of life outcomes, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Systematic review of the health-related quality of life issues facing adolescents and young adults with cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Pooled it
- Japanese version of the cancer needs questionnaire-young people (CNQ-YP-J): translation and preliminary validation.BMC cancer · 2025Article
- Prediction of accident-proneness among a sample of Iranian workers: usefulness of an adjusted version of the Health Belief Model with spiritual health.BMC psychology · 2024Article
- Advancing the call towards implementing AYA screening of needs in adult oncology settings.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs.Health and quality of life outcomes · 2024Article
- A Midwest Stakeholder Evaluation of an Adolescent and Young Adult Cancer Survivor Needs Assessment Survey.Journal of adolescent and young adult oncology · 2024Article
- Exploring the Relationship between Self-Rated Health and Unmet Cancer Needs among Sexual and Gender Minority Adolescents and Young Adults with Cancer.Current oncology (Toronto, Ont.) · 2023Article
- The relationship between unmet cancer care needs and self-rated health among adolescents and young adults with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Identifying health-related quality of life cut-off scores that indicate the need for supportive care in young adults with cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Psychometric properties of the Slovenian version of the Cancer Survivors' Unmet Needs (CaSUN-SL) measure in post-treatment cancer survivors.BMC psychology · 2022Article
- An actionable needs assessment for adolescents and young adults with cancer: the AYA Needs Assessment & Service Bridge (NA-SB).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Harmonizing evidence-based practice, implementation context, and implementation strategies with user-centered design: a case example in young adult cancer care.Implementation science communications · 2021Article
- Health-Related Quality of Life Issues in Adolescents and Young Adults with Cancer: Discrepancies with the Perceptions of Health Care Professionals.Journal of clinical medicine · 2021Article
- The Impact of Financial Toxicity on Psychological Well-Being, Coping Self-Efficacy, and Cost-Coping Behaviors in Young Adults with Cancer.Journal of adolescent and young adult oncology · 2019Article
- Developmentally appropriate care for adolescents and young adults with cancer: how well is Australia doing?Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- A consumer register: an acceptable and cost-effective alternative for accessing patient populations.BMC medical research methodology · 2016Article
- Psychological impact of lymphoma on adolescents and young adults: not a matter of black or white.Journal of cancer survivorship : research and practice · 2016Article
- Review
- Quality of life in adolescent and young adult cancer patients: a systematic review of the literature.Patient related outcome measures · 2015Review
- Unmet information and support needs in newly diagnosed thyroid cancer: comparison of adolescents/young adults (AYA) and older patients.Journal of cancer survivorship : research and practice · 2014Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdolescents and young adult (AYA) cancer survivors may have unique physical, psychological and social needs due to their cancer occurring at a critical phase of development. The aim of this study was to develop a psychometrically rigorous measure of unmet need to capture the specific needs of this group.
methodsItems were developed following a comprehensive literature review, focus groups with AYAs, and feedback from health care providers, researchers and other professionals. The measure was pilot tested with 32 AYA cancer survivors recruited through a state-based cancer registry to establish face and content validity. A main sample of 139 AYA cancer patients and survivors were recruited through seven treatment centres and invited to complete the questionnaire. To establish test-retest reliability, a sub-sample of 34 participants completed the measure a second time. Exploratory factor analysis was performed and the measure was assessed for internal consistency, discriminative validity, potential responsiveness and acceptability.
resultsThe Cancer Needs Questionnaire - Young People (CNQ-YP) has established face and content validity, and acceptability. The final measure has 70 items and six factors: Treatment Environment and Care (33 items); Feelings and Relationships (14 items); Daily Life (12 items); Information and Activities (5 items); Education (3 items); and Work (3 items). All domains achieved Cronbach's alpha values greater than 0.80. Item-to-item test-retest reliability was also high, with all but four items reaching weighted kappa values above 0.60.
conclusionsThe CNQ-YP is the first multi-dimensional measure of unmet need which has been developed specifically for AYA cancer patients and survivors. The measure displays a strong factor structure, and excellent internal consistency and test-retest reliability. However, the small sample size has implications for the reliability of the statistical analyses undertaken, particularly the exploratory factor analysis. Future studies with a larger sample are recommended to confirm the factor structure of the measure. Longitudinal studies to establish responsiveness and predictive validity should also be undertaken.
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