ArticleJournal of genetic counseling2012
Couples' coping in prodromal Huntington disease: a mixed methods study.
Article in Journal of genetic counseling, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
12 citing papers in PubMed, 19 citations in OpenAlex.
- Unawareness of motor deficit in Huntington's disease.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026Article
- Anosognosia and avoidant coping do not impact work in early Huntington's disease.Journal of Huntington's disease · 2025Article
- Intrapersonal and Interpersonal Disengagement Coping: Associations with Emotions of Youth At-Risk for Huntington's Disease.Journal of Huntington's disease · 2023Article
- Perceived Effects of Neuropsychiatric Symptoms on Functional Status in Early-stage Huntington Disease.Western journal of nursing research · 2022Article
- Social Withdrawal in Huntington's Disease: A Scoping Review.Journal of Huntington's disease · 2022Article
- Investigating the interplay of working memory, affective symptoms, and coping with stress in offspring of parents with Huntington's disease.Neuropsychology · 2020Article
- Families Affected by Huntington's Disease Report Difficulties in Communication, Emotional Involvement, and Problem Solving.Journal of Huntington's disease · 2017Article
- Sacred Spaces: Religious and Secular Coping and Family Relationships in the Neonatal Intensive Care Unit.Advances in neonatal care : official journal of the National Association of Neonatal Nurses · 2016Article
- Everyday cognition in prodromal Huntington disease.Neuropsychology · 2015Article
- Onset of Huntington's disease: can it be purely cognitive?Movement disorders : official journal of the Movement Disorder Society · 2014Article
- How do partners find out about the risk of Huntington's disease in couple relationships?Journal of genetic counseling · 2013Article
- Strategies used by teens growing up in families with Huntington disease.Journal of pediatric nursingArticle
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
Huntington disease (HD) includes a prodromal phase with behavioral, cognitive, and motor function decline occurring up to 15 years prior to diagnosis. This study used mixed methods to examine how people in the prodromal phase and their companions coped with noticed changes. Twenty-three couples completed a semi-structured interview and Brief COPE. Participants with prodromal HD used acceptance, emotional support, and planning most frequently; companions used acceptance, planning, and active coping. Least frequently used coping strategies for each were denial, behavioral disengagement, and substance use. Qualitative interviews revealed coping strategies not included in the Brief COPE. Participants with prodromal HD used prescription medications, coping as a couple, hope, and self-monitoring; companions used hope and helping their partners. Many of the coping procedures were rated as effective, especially when changes were not severe. Couples may benefit from counseling that emphasizes using active coping strategies for changes that can be compensated for and acceptance for changes that cannot in prodromal HD. Findings from this study may be helpful for counseling patients and significant others facing other neurodegenerative conditions with prodromal or early phases, such as Alzheimer disease and Parkinson disease.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.