ArticleJournal of genetic counseling2012
Perception of direct-to-consumer genetic testing and direct-to-consumer advertising of genetic tests among members of a large managed care organization.
Article in Journal of genetic counseling, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review.Journal of medical Internet research · 2015Pooled it
- Motivations, perceptions and impacts of direct-to-consumer genetic testing among users in Brazil.Journal of community genetics · 2025Article
- The attitude of young people in the city of Yakutsk to DNA-testing.International journal of circumpolar health · 2021Article
- Can Precision Medicine Actually Help People Like Me? African American and Hispanic Perspectives on the Benefits and Barriers of Precision Medicine.Ethnicity & disease · 2020Article
- Racial minority group interest in direct-to-consumer genetic testing: findings from the PGen study.Journal of community genetics · 2017Article
- Attitudes towards personal genomics among older Swiss adults: An exploratory study.Applied & translational genomics · 2016Article
- Interest in genomic SNP testing for prostate cancer risk: a pilot survey.Hereditary cancer in clinical practice · 2015Article
- Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing.American journal of medical genetics. Part A · 2014Article
- Perceptions of African-American health professionals and community members on the participation of children and pregnant women in genetic research.Public health genomics · 2014Article
- Primary care patients' views and decisions about, experience of and reactions to direct-to-consumer genetic testing: a longitudinal study.Journal of community genetics · 2013Article
- Direct-to-Consumer Genetic Testing and Personal Genomics Services: A Review of Recent Empirical Studies.Current genetic medicine reports · 2013Article
- Genetics patients' perspectives on clinical genomic testing.Personalized medicine · 2013Article
- Attitudes of African Americans toward return of results from exome and whole genome sequencing.American journal of medical genetics. Part A · 2013Article
- Public awareness and use of direct-to-consumer personal genomic tests from four state population-based surveys, and implications for clinical and public health practice.Genetics in medicine : official journal of the American College of Medical Genetics · 2012Article
- From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.AJOB empirical bioethicsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
This small qualitative study was designed to determine possible attitudes toward and understanding of direct-to-consumer (DTC) genetic testing among members of a large managed care organization, and whether differences might exist between population groups. Ten focus groups were conducted by population type (high risk, White, African American, Hispanic/Latino) to determine knowledge, attitudes and beliefs about DTC genetics. Focus group transcripts were coded for attitudes toward and framing of the issue. Study results found participants were negative towards DTC genetic testing but they also found some aspects useful. Participants framed the issue mainly in terms of disease prevention and uncertainty of reaction to results, with some variation between population types. The concept of an "Informed Consumer," or process to seek information when the issue becomes personally relevant, emerged. This concept suggests that individuals may seek additional assistance to make personally-appropriate choices when faced with a DTC advertisement or genetic test.
Indexed as
Identifiers
22278218What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.