ArticleGenetics in medicine : official journal of the American College of Medical Genetics2012
Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.
Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- When genomics companies act as biobanks: governance challenges in an era of genomic assetization.Frontiers in genetics · 2026Article
- Implementing genetics clinic for hereditary cancer in resource-constrained settings: a narrative review.Journal of community genetics · 2025Review
- Eliciting Willingness and Beliefs towards Participation in Genetic Psychiatric Testing in Black/African American Mothers at Risk for Depression.Behavioral sciences (Basel, Switzerland) · 2020Article
- Genetic data partnerships: academic publications with privately owned or generated genetic data.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- Utilization of Genetic Counseling after Direct-to-Consumer Genetic Testing: Findings from the Impact of Personal Genomics (PGen) Study.Journal of genetic counseling · 2017Article
- Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing: Role of Demographic Factors and the Testing Experience.The Milbank quarterly · 2017Article
- Diet and exercise changes following direct-to-consumer personal genomic testing.BMC medical genomics · 2017Article
- Prescription medication changes following direct-to-consumer personal genomic testing: findings from the Impact of Personal Genomics (PGen) Study.Genetics in medicine : official journal of the American College of Medical Genetics · 2017Article
- Personal Genomic Testing for Cancer Risk: Results From the Impact of Personal Genomics Study.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2017Article
- Implications of Personal Genomic Testing for Health Behaviors: The Case of Smoking.Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco · 2016Article
- Adopting genetics: motivations and outcomes of personal genomic testing in adult adoptees.Genetics in medicine : official journal of the American College of Medical Genetics · 2016Article
- Consumers report lower confidence in their genetics knowledge following direct-to-consumer personal genomic testing.Genetics in medicine : official journal of the American College of Medical Genetics · 2016Article
- The impact of direct-to-consumer personal genomic testing on perceived risk of breast, prostate, colorectal, and lung cancer: findings from the PGen study.BMC medical genomics · 2015Article
- What adolescents enrolled in genomic addiction research want to know about conflicts of interest.Drug and alcohol dependence · 2015Article
- How Well Do Customers of Direct-to-Consumer Personal Genomic Testing Services Comprehend Genetic Test Results? Findings from the Impact of Personal Genomics Study.Public health genomics · 2015Article
- Explaining, not just predicting, drives interest in personal genomics.Genome medicine · 2015Article
- Design and implementation of a randomized controlled trial of genomic counseling for patients with chronic disease.Journal of personalized medicine · 2014Article
- Design, methods, and participant characteristics of the Impact of Personal Genomics (PGen) Study, a prospective cohort study of direct-to-consumer personal genomic testing customers.Genome medicine · 2014Article
- Converging technologies: a critical analysis of cognitive enhancement for public policy application.Science and engineering ethics · 2013Article
- Direct-to-Consumer Genetic Testing and Personal Genomics Services: A Review of Recent Empirical Studies.Current genetic medicine reports · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
purposeTo describe the process of structuring a partnership between academic researchers and two personalized genetic testing companies that would manage conflicts of interest while allowing researchers to study the impact of this nascent industry.
methodsWe developed a transparent process of ongoing communication about the interests of all research partners to address challenges in establishing study goals, survey development, data collection, analysis, and manuscript preparation. Using the existing literature on conflicts of interest and our experience, we created a checklist for academic and industry researchers seeking to structure research partnerships.
resultsOur checklist includes questions about the risk to research participants, sponsorship of the study, control of data analysis, freedom to publish results, the impact of the research on industry customers, openness to input from all partners, sharing results before publication, and publication of industry-specific data. Transparency is critical to building trust between partners. Involving all partners in the research development enhanced the quality of our research and provided an opportunity to manage conflicts early in the research process.
conclusionNavigating relationships between academia and industry is complex and requires strategies that are transparent and responsive to the concerns of all. Employing a checklist of questions prior to beginning a research partnership may help to manage conflicts of interest.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.