ArticleAnnals of family medicine
Envisioning a learning health care system: the electronic primary care research network, a case study.
Article in Annals of family medicine. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Reducing diagnostic errors in primary care. A systematic meta-review of computerized diagnostic decision support systems by the LINNEAUS collaboration on patient safety in primary care.The European journal of general practice · 2015Pooled it
- Implementation of a Care Pathway for Primary Palliative Care in 5 research clusters in Belgium: quasi-experimental study protocol and innovations in data collection (pro-SPINOZA).BMC palliative care · 2015Trial
- Challenges and strategies for conducting research in primary health care practice: an integrative review.BMC health services research · 2023Review
- Article
- Describing a complex primary health care population to support future decision support initiatives.International journal of population data science · 2022Article
- A maturity grid assessment tool for learning networks.Learning health systems · 2021Article
- An Analysis of the Learning Health System in Its First Decade in Practice: Scoping Review.Journal of medical Internet research · 2020Article
- Estimating Morbidity Rates Based on Routine Electronic Health Records in Primary Care: Observational Study.JMIR medical informatics · 2019Article
- Recruiting general practitioners for palliative care research in primary care: real-life barriers explained.BMC family practice · 2019Article
- Article
- Strengthening primary health care teams with palliative care leaders: protocol for a cluster randomized clinical trial.BMC palliative care · 2017Article
- Shaping innovations in long-term care for stroke survivors with multimorbidity through stakeholder engagement.PloS one · 2017Article
- Improving the quality of EHR recording in primary care: a data quality feedback tool.Journal of the American Medical Informatics Association : JAMIA · 2017Article
- Review and evaluation of electronic health records-driven phenotype algorithm authoring tools for clinical and translational research.Journal of the American Medical Informatics Association : JAMIA · 2015Review
- A Multistep Maturity Model for the Implementation of Electronic and Computable Diagnostic Clinical Prediction Rules (eCPRs).EGEMS (Washington, DC) · 2015Article
- A Digital Architecture for a Network-Based Learning Health System: Integrating Chronic Care Management, Quality Improvement, and Research.EGEMS (Washington, DC) · 2015Article
- Extension of the primary care research object model (PCROM) as clinical research information model (CRIM) for the "learning healthcare system".BMC medical informatics and decision making · 2014Article
- Reusing electronic patient data for dental clinical research: a review of current status.Journal of dentistry · 2013Review
- An adaptable architecture for patient cohort identification from diverse data sources.Journal of the American Medical Informatics Association : JAMIA · 2013Article
- Unlocking the research potential of the GP electronic care record.The British journal of general practice : the journal of the Royal College of General Practitioners · 2013Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposeThe learning health care system refers to the cycle of turning health care data into knowledge, translating that knowledge into practice, and creating new data by means of advanced information technology. The electronic Primary Care Research Network (ePCRN) was a project, funded by the U.S. National Institutes of Health, with the aim to facilitate clinical research using primary care electronic health records (EHRs).
methodsWe identified the requirements necessary to deliver clinical studies via a distributed electronic network linked to EHRs. After we explored a variety of informatics solutions, we constructed a functional prototype of the software. We then explored the barriers to adoption of the prototype software within U.S. practice-based research networks.
resultsWe developed a system to assist in the identification of eligible cohorts from EHR data. To preserve privacy, counts and flagging were performed remotely, and no data were transferred out of the EHR. A lack of batch export facilities from EHR systems and ambiguities in the coding of clinical data, such as blood pressure, have so far prevented a full-scale deployment. We created an international consortium and a model for sharing further ePCRN development across a variety of ongoing projects in the United States and Europe.
conclusionsA means of accessing health care data for research is not sufficient in itself to deliver a learning health care system. EHR systems need to use sophisticated tools to capture and preserve rich clinical context in coded data, and business models need to be developed that incentivize all stakeholders from clinicians to vendors to participate in the system.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.