ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2012
Health-related quality of life of Spanish children with cystic fibrosis.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Quality of life is associated with physical activity and fitness in cystic fibrosis.BMC pulmonary medicine · 2014Trial
- Influencing factors of physical activity in youths with cystic fibrosis: a socioecological approach.ERJ open research · 2026Article
- Parents' Knowledge of the Impact of Cystic Fibrosis on the Quality of Life of Children and Adolescents Suffering from This Disease as an Element of Patient Safety.Journal of clinical medicine · 2023Article
- Physical activity and its correlates in people with cystic fibrosis: a systematic review.European respiratory review : an official journal of the European Respiratory Society · 2022Review
- Quality of life amongst adolescents and young adults with cystic fibrosis: correlations with clinical outcomes.Clinics (Sao Paulo, Brazil) · 2018Article
- Measuring the burden of treatment for chronic disease: implications of a scoping review of the literature.BMC medical research methodology · 2017Article
- Gender Differences in Clinical Presentations of Cystic Fibrosis Patients in Azeri Turkish Population.Tuberculosis and respiratory diseases · 2016Article
- Association Between Outcomes and Demographic Factors in an Azeri Turkish Population With Cystic Fibrosis: A Cross-Sectional Study in Iran From 2001 Through 2014.Iranian Red Crescent medical journal · 2016Article
- Chest CT abnormalities and quality of life: relationship in adult cystic fibrosis.Annals of translational medicine · 2016Article
- Social and economic costs and health-related quality of life in non-institutionalised patients with cystic fibrosis in the United Kingdom.BMC health services research · 2015Article
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Authors and funding
9 authors.
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Abstract
purposeTo investigate (1) the contributions of sex, age, nutritional status- and physical-fitness-related variables on health-related quality of life (HRQOL) in Spanish children with cystic fibrosis, and (2) the agreement on HRQOL between children and their parents.
methodsIn 28 children aged 6-17 years, body mass index percentile, percentage body fat, physical activity, pulmonary function, cardiorespiratory fitness, functional mobility, and dynamic muscle strength were determined using objective measures. HRQOL was measured using the revised version of the cystic fibrosis questionnaire. Simple and multiple linear regression analyses were performed to determine the variables associated with HRQOL. To assess the agreement on HRQOL between children and parents, intra-class correlation coefficients (ICCs) were calculated.
resultsGirls reported worse emotional functioning, a higher treatment burden, and more respiratory problems than boys. Greater functional mobility appeared associated with a less favourable body image and more eating disturbances. Agreement on HRQOL between children and parents was good to excellent, except for the domain of treatment burden.
conclusionsSex and age were stronger predictors of HRQOL than nutritional status- or physical-fitness-related variables. Children reported a lower treatment burden than their parents perceived them to have.
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