ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2011
Development and early usage patterns of a consumer-facing family health history tool.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05277116 (The Electronic Medical Records and GEnomics), which is not on this map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Electronic Medical Records and GEnomics (eMERGE) Network Genomic Risk Assessment
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Leveraging Health Information Technology to Collect Family Cancer History: A Systematic Review and Meta-Analysis.JCO clinical cancer informatics · 2021Pooled it
- Web-based tool for cancer family history collection: A prospective randomized controlled trial.Gynecologic oncology · 2023Trial
- The Role of Computer Skills in Personal Health Record Adoption Among Patients With Heart Disease: Multidimensional Evaluation of Users Versus Nonusers.JMIR human factors · 2021Article
- Primary care physician experiences utilizing a family health history tool with electronic health record-integrated clinical decision support: an implementation process assessment.Journal of community genetics · 2020Article
- Evaluation of family health history collection methods impact on data and risk assessment outcomes.Preventive medicine reports · 2020Article
- Applying theory to characterize impediments to dissemination of community-facing family health history tools: a review of the literature.Journal of community genetics · 2020Review
- Family health history: underused for actionable risk assessment.Lancet (London, England) · 2019Review
- Patient experience with family history tool: analysis of patients' experience sharing their family health history through patient-computer dialogue in a patient portal.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- Effect of Sociodemographic Factors on Uptake of a Patient-Facing Information Technology Family Health History Risk Assessment Platform.Applied clinical informatics · 2019Article
- Implementation, adoption, and utility of family health history risk assessment in diverse care settings: evaluating implementation processes and impact with an implementation framework.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- What characterizes cancer family history collection tools? A critical literature review.Current oncology (Toronto, Ont.) · 2018Review
- Review and Comparison of Electronic Patient-Facing Family Health History Tools.Journal of genetic counseling · 2018Review
- A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer.Hereditary cancer in clinical practice · 2018Article
- Leveraging the Value of Human Relationships to Improve Health Outcomes. Lessons learned from the OpenMRS Electronic Health Record System.Applied clinical informatics · 2017Article
- A model for patient-direct screening and referral for familial cancer risk.Familial cancer · 2016Article
- Review
- Counsellee's experience of cancer genetic counselling with pedigrees that automatically incorporate genealogical and cancer database information.Journal of community genetics · 2016Article
- Profiling Fast Healthcare Interoperability Resources (FHIR) of Family Health History based on the Clinical Element Models.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2016Article
- Multi-source development of an integrated model for family health history.Journal of the American Medical Informatics Association : JAMIA · 2015Article
- Translational Genomics in Low- and Middle-Income Countries: Opportunities and Challenges.Public health genomics · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Personalized medicine will require detailed clinical patient profiles, and a particular focus on capturing data that is useful in forecasting risk. A detailed family health history is considered a critical component of these profiles, insomuch that it has been coined as 'the best genetic test available'. Despite this, tools aimed at capturing this information for use in electronic health records have been characterized as inadequate. In this manuscript we detail the creation of a patient-facing family health history tool known as OurFamilyHealth, whose long-term emphasis is to facilitate risk assessment and clinical decision support. We present the rationale for such a tool, describe its development and release as a component of Intermountain Healthcare's patient portal, and detail early usage statistics surrounding the application. Data derived from the tool since its release are also compared against family history charting patterns in Intermountain's electronic health records, revealing differences in data availability.
Indexed as
Identifiers
22195113PMC3243155What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.