ArticleJournal of community genetics2012
A profile of the genetic counsellor and genetic nurse profession in European countries.
Article in Journal of community genetics, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 45 citations in OpenAlex.
- Empowering the "Empowerers": An Evaluation of Empowerment of Genetic Counselors in Patient-Facing Roles in Canada.Journal of genetic counseling · 2026Article
- From tradition to transformation: evolving models of care in clinical genetics.Current opinion in pediatrics · 2025Review
- Analysis of Nursing Education Curricula in Spain: Integration of Genetic and Genomic Concepts.Nursing reports (Pavia, Italy) · 2024Review
- Patient experiences and perceived value of genetic testing in inherited retinal diseases: a cross-sectional survey.Scientific reports · 2024Article
- Translation, validation, and comparison of genetic knowledge scales in Greek and German.Frontiers in genetics · 2024Article
- The current state of the genetic counselor profession in the German-speaking countries.Genetics in medicine open · 2024Article
- Genetic counseling workforce diversity, inclusion, and capacity in Australia and New Zealand.Genetics in medicine open · 2024Article
- The role of the Genetic Counsellor in the multidisciplinary team: the perception of geneticists in Europe.European journal of human genetics : EJHG · 2022Article
- The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- The changing face of clinical genetics service delivery in the era of genomics: a framework for monitoring service delivery and data from a comprehensive metropolitan general genetics service.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- Genetics and genetic counseling in psychiatry: Results from an opinion survey of professionals and users.Molecular genetics & genomic medicine · 2019Article
- The rise of the genetic counseling profession in China.American journal of medical genetics. Part C, Seminars in medical genetics · 2019Article
- The Global State of the Genetic Counseling Profession.European journal of human genetics : EJHG · 2019Review
- The perceived impact of the European registration system for genetic counsellors and nurses.European journal of human genetics : EJHG · 2017Article
- The need to develop an evidence base for genetic counselling in Europe.European journal of human genetics : EJHG · 2016Article
- Components of genetic counsellor education: A systematic review of the peer-reviewed literature.Journal of community genetics · 2016Review
- Development of a registration system for genetic counsellors and nurses in health-care services in Europe.European journal of human genetics : EJHG · 2016Article
- Genetic counsellors in Sweden: their role and added value in the clinical setting.European journal of human genetics : EJHG · 2016Article
- Genetic professionals' views on genetic counsellors: a French survey.Journal of community genetics · 2016Article
- Quality issues concerning genetic counselling for presymptomatic testing: a European Delphi study.European journal of human genetics : EJHG · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 5 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Quality genetic healthcare services should be available throughout Europe. However, due to enhanced diagnostic and genetic testing options, the pressure on genetic counselling services has increased. It has been shown in many countries that appropriately trained genetic counsellors and genetic nurses can offer clinical care for patients seeking information or testing for a wide range of genetic conditions. The European Society of Human Genetics is setting up a system of accreditation for genetic counsellors, to ensure safe practice, however there has been little information about the practice and education of non-medical genetic counsellors in Europe. To collect baseline data, we approached key informants (leaders in national genetics organisations or experienced practitioners) to complete an online survey, reporting on the situation in their own country. Twenty-nine practitioners responded, providing data from 18 countries. The findings indicate huge variation in genetic counsellor numbers, roles, and education across Europe. For example, in UK and The Netherlands, there are more than four counsellors per million population, while in Germany, Hungary, Turkey, and Czech Republic, there are no non-medical counsellors. There are specific educational programmes for genetic counsellors in seven countries, but only France has a specific governing legal framework for genetic counsellors. In the post-genomic era, with added pressure on health systems due to increases in availability and use of genetic testing, these disparities are likely to result in inequalities in service provided to European citizens. This study underpins the need for a coherent European approach to accreditation of genetic counsellors.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.