SynthesisThe ABNF journal : official journal of the Association of Black Nursing Faculty in Higher Education, Inc2011
A systematic review of strategies that increase the recruitment and retention of African American adults in genetic and genomic studies.
Synthesis in The ABNF journal : official journal of the Association of Black Nursing Faculty in Higher Education, Inc, 2011. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Interventions to Reduce Hospital Readmissions in Older African Americans: A Systematic Review of Studies Including African American Patients.Journal of racial and ethnic health disparities · 2023Pooled it
- Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups.BMC medical research methodology · 2014Pooled it
- Lessons Learned in Clinical Trial Recruitment: A Partnership Between a Genomic Research Study and the Discover Together Biobank.Biopreservation and biobanking · 2026Review
- Factors Influencing Participation in Precision Health Research Among Diverse Individuals in South Carolina.Journal of racial and ethnic health disparities · 2026Article
- Outcomes from a Novel Approach to Studying Consumer Genetic Testing for Germline Cancer and Cardiovascular Risk.American journal of medical genetics. Part A · 2025Article
- Engaging migrants and immigrants in genetics research.Nature genetics · 2025Review
- Key contextual factors involved with participation in medical and genomic screening and research for African American and White Americans: a qualitative inquiry.Journal of community genetics · 2024Article
- "I Have Come Because I See You Care About Me": Recruiting Older Black Americans for Genomic Research.Ethnicity & disease · 2024Article
- Characterizing participants who respond to text, email, phone calls, or postcards in a SARS-CoV-2 prevalence study.BMC public health · 2024Article
- The Inclusion of Underrepresented Populations in Cardiovascular Genetics and Epidemiology.Journal of cardiovascular development and disease · 2024Review
- Leveraging African American family connectors for Alzheimer's disease genomic studies.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- Participation in genetic screening: testing different outreach methods across a diverse hospital system based patient population.Frontiers in genetics · 2023Article
- Recruitment strategies and lessons learned from a large genetic study of African Americans.PLOS global public health · 2022Article
- Recruiting for diversity: a pilot test of recruitment strategies for a national alcohol survey with mail-in genetic data collection.Journal of community genetics · 2021Article
- Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.Journal of clinical and translational science · 2021Article
- Racial/ethnic concordance between patients and researchers as a predictor of study attrition.Social science & medicine (1982) · 2020Article
- Why African Americans say "No": A Study of Pharmacogenomic Research Participation.Ethnicity & disease · 2020Article
- Tygerberg Research Ubuntu-Inspired Community Engagement Model: Integrating Community Engagement into Genomic Biobanking.Biopreservation and biobanking · 2019Article
- Evaluation of the cost and effectiveness of diverse recruitment methods for a genetic screening study.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- Successful recruitment and retention of diverse participants in a genomics clinical trial: a good invitation to a great party.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundThe National Institutes of Health mandates the inclusion of ancestrally diverse populations into federally funded biomedical and clinical trials research. However, low participation of ethnic minorities in genetics-genomics research continues to be one of the most difficult aspects of conducting human subjects research.
objectiveThis systematic review was conducted to document effective recruitment strategies that increase participation in genetics-genomics studies.
methodsExtensive literature search strategies were employed to locate and appraise relevant literature reporting original data in which strategies to recruit African American adults into genetics-genomics research studies had been evaluated.
resultsSix studies published up to July, 2011 were included. Informal recruitment strategies for initial contact appeared to have a more positive impact on increasing recruitment and participation numbers than formal mailings of letters and postcards. Another key stratagem identified was participant-recruiter like-ancestry. Other methods such as monetary incentives and support of the research project by community leaders were not as effective.
conclusionsSome strategies bolstered recruitment rates while others did not. More research is needed to determine the efficacy of recruitment strategies with African Americans.
Indexed as
Identifiers
22165568PMC3439996What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.