ArticleResearch in nursing & health2012
A longitudinal study of families with technology-dependent children.
Article in Research in nursing & health, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed.
- Resourcefulness Intervention Efficacy for Parent Caregivers of Technology-Dependent Children: A Randomized Trial.Western journal of nursing research · 2022Trial
- Improving transitions in care for children with complex and medically fragile needs: a mixed methods study.BMC pediatrics · 2020Trial
- Journaling as reinforcement for the resourcefulness training intervention in mothers of technology-dependent children.Applied nursing research : ANR · 2016Trial
- Resourcefulness training intervention: a promising approach to improve mental health of mothers with technology-dependent children.Applied nursing research : ANR · 2014Trial
- The health and well-being of children with medical complexity and their parents' when admitted to inpatient care units: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2026Article
- Caring for the child with intestinal failure on home parenteral nutrition: A scoping review.JPEN. Journal of parenteral and enteral nutrition · 2026Article
- Latent profiles and predictors of barriers to care in Swiss children and adolescents with rare diseases.Journal of pediatric psychology · 2024Article
- The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician's decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1.Frontiers in pediatrics · 2023Article
- Expanding Workplace Inclusion of Employees Who Are Parents of Children with Disabilities through Diversity Training.Healthcare (Basel, Switzerland) · 2022Article
- Mothers' experiences of giving medicines to children with severe and profound intellectual disabilities-The impact on time.Child: care, health and development · 2022Article
- Children With Medical Complexity in the Canadian Maritimes: Protocol for a Mixed Methods Study.JMIR research protocols · 2022Article
- Tracing the Use of the Family Management Framework and Measure: A Scoping Review.Journal of family nursing · 2021Article
- Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation.International journal of environmental research and public health · 2020Article
- Article
- The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?Health and quality of life outcomes · 2020Article
- Caring for technology-dependent children at home: Problems and solutions identified by mothers.Applied nursing research : ANR · 2019Article
- Survey of financial burden of families in the U.S. with children using home mechanical ventilation.Pediatric pulmonology · 2018Article
- Quality of life in home-ventilated children and their families.European journal of pediatrics · 2017Article
- Factors Related to Depressive Symptoms in Mothers of Technology-Dependent Children.Issues in mental health nursing · 2015Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Few researchers have longitudinally examined families caring for technology-dependent children at home. We tested a theoretically and empirically based conceptual model by examining family functioning and normalization in 82 mothers (female primary caregivers) twice over 12 months. Time 1 and Time 2 cross-sectional findings were consistent; the only predictor of family functioning was mothers' depressive symptoms. Contrary to the proposed model, normalization, caregiving duration, and home nursing hours were not directly related to family functioning. Baseline family functioning significantly predicted future family functioning. Also, mothers whose children were no longer technology-dependent at Time 2 reported significant improvements in family functioning and normalization. An intervention to address high levels of depressive symptoms of these mothers is essential to optimizing family functioning.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.